My heart and eyes cry today for seven year old Conner who passed away Thursday, June 24, 2010. He battled cystic fibrosis and prune belly disease, which meant he essentially had no muscles to cough....and with CF, that's a terrible combination. It's evident that he was such a fighter and joyous child yet cystic fibrosis has taken another precious, innocent life.
Breathe Freely, Conner Man
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Labels: conner
America's Got Talent!!! CF Awareness!
So exciting! America's Got Talent TV show featured a 7 MINUTE clip on Christina & Ali ages 13 and 20 BOTH with cystic fibrosis! An interview with the sisters revealed that all 4 of the siblings in their family have CF and the two of them sing. It was excellent exposure for CF awareness and although we didn't see the show the night it aired, I heard about it from MANY other people who did. Then, saw the link all over facebook. For those of you who missed it, check it out. The younger one is especially good!
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Perfect Flower Girl!
What a doll. I mean, there's nothing more to say!
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Quarterly CF Team Appointment
Oops, I almost forgot the appointment until they called to remind me! I'd never written it into my all encompassing calendar of events, but we made it work.
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