tag:blogger.com,1999:blog-15301811623762933622024-02-21T10:00:02.418-08:00Team FaithFULLSpreading awareness, giving our family updates & helping to fund a cure for Cystic FibrosisFaithhttp://www.blogger.com/profile/05879331598882462876noreply@blogger.comBlogger35125tag:blogger.com,1999:blog-1530181162376293362.post-29103430080775652772011-04-19T08:44:00.000-07:002011-04-19T20:19:34.225-07:002011 April<div>April 2011<div>It's been far too long since I've made an update...last summer. So I'm planning to go back and add a few in. We're gearing up for the Cystic Fibrosis Foundation's Greatstrides walk May 21, 2011 at the capital and we'd love for you to join us and/or make a donation. It's a casual walk on beautiful grounds with lunch provided and entertainment for children and adults! To sign up or donate please go to www.TeamFaithFull.com and be sure to check out Faith's latest VIDEO!<div><br /></div><div>Overall Faith is doing quite well. She just turned 6 in March and has lost her 2 front lower teeth which she is ecstatic about to say the least. She also has a small cross bite and now wears a retainer....and of course being that it's Faith, she loves that too!</div></div></div><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjUz-WTwn9vhyESCGoHIHF5NFhXNmtaILdP3BlQeMENxGRrbN3f_bTcj7r8hxyps2Ew5-m43drnVx5L3hettLj0FhC4DMHNtT26aQswnzOVeRA3LedxOaoGVF17FR0CWx6xEhrPM4-27vA/s1600/photo.JPG" onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}"><img style="cursor:pointer; cursor:hand;width: 320px; height: 240px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjUz-WTwn9vhyESCGoHIHF5NFhXNmtaILdP3BlQeMENxGRrbN3f_bTcj7r8hxyps2Ew5-m43drnVx5L3hettLj0FhC4DMHNtT26aQswnzOVeRA3LedxOaoGVF17FR0CWx6xEhrPM4-27vA/s320/photo.JPG" border="0" alt="" id="BLOGGER_PHOTO_ID_5597500084378914914" /></a><br />At her last clinic appointment she was given a prescription for hypertonic saline. At our clinic, kids start this inhalation therapy (like inhaling salt water mist) at age 6 because research has proven that it significantly aids the lung function and reduces the number of lung infection in people with CF. So she uses a quick inhaler of a bronchodilator to open up her airways prior to these two added 15 minute breathing treatments to her daily routine. Thankfully, Faith is a trooper and hasn't really complained about it at all. It made her cough alot in the beginning, but she's more used to it now. We're trying to get another Paritrek ordered, which is a portable nebulizer so she can walk around or be in the car or wherever and do her breathing treatments. We had one before that gave up on us....always on the go....she used it camping around the fire and everything! CF can't slow us down much!Faithhttp://www.blogger.com/profile/05879331598882462876noreply@blogger.com2tag:blogger.com,1999:blog-1530181162376293362.post-63349900613929805252011-03-04T20:32:00.000-08:002011-04-19T20:41:26.901-07:002011 March 4<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhk4At2s7hc6Y4uq-UkDEb1UFGSFcaWoUDAJY5JsBEBVJgR1WANRoEGxltJMTTq1ms8l_8BkZaENuNIHpPY1kT35I-EKQg7KHyeOHXrMiTxpVupd1cHZGKnCn3Q512DelGuJK4G5u5WHHs/s1600/IMG_6475+%25281%2529.JPG" onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}"><img style="cursor:pointer; cursor:hand;width: 214px; height: 320px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhk4At2s7hc6Y4uq-UkDEb1UFGSFcaWoUDAJY5JsBEBVJgR1WANRoEGxltJMTTq1ms8l_8BkZaENuNIHpPY1kT35I-EKQg7KHyeOHXrMiTxpVupd1cHZGKnCn3Q512DelGuJK4G5u5WHHs/s320/IMG_6475+%25281%2529.JPG" border="0" alt="" id="BLOGGER_PHOTO_ID_5597504294512394290" /></a><div><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhk4At2s7hc6Y4uq-UkDEb1UFGSFcaWoUDAJY5JsBEBVJgR1WANRoEGxltJMTTq1ms8l_8BkZaENuNIHpPY1kT35I-EKQg7KHyeOHXrMiTxpVupd1cHZGKnCn3Q512DelGuJK4G5u5WHHs/s1600/IMG_6475+%25281%2529.JPG" onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}"></a><br /><div><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhk4At2s7hc6Y4uq-UkDEb1UFGSFcaWoUDAJY5JsBEBVJgR1WANRoEGxltJMTTq1ms8l_8BkZaENuNIHpPY1kT35I-EKQg7KHyeOHXrMiTxpVupd1cHZGKnCn3Q512DelGuJK4G5u5WHHs/s1600/IMG_6475+%25281%2529.JPG" onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}"></a><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiwG3c1h4nV8E1l6i-CyL-koas_xTGTjyQpu_3HM4nocUMZEq1gMTttKdBelklbTrqmhfSVLRJovDtsUny0X6QDw2Cppvh56ge7oOcwoSTZsQNwfTeQp_7Ewh2Z8zyssHgvln8AkRabRTw/s1600/IMG_6668.jpg" onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}"><img src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiwG3c1h4nV8E1l6i-CyL-koas_xTGTjyQpu_3HM4nocUMZEq1gMTttKdBelklbTrqmhfSVLRJovDtsUny0X6QDw2Cppvh56ge7oOcwoSTZsQNwfTeQp_7Ewh2Z8zyssHgvln8AkRabRTw/s320/IMG_6668.jpg" border="0" alt="" id="BLOGGER_PHOTO_ID_5597504297010086466" style="cursor: pointer; width: 320px; height: 214px; " /></a></div><div><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiwG3c1h4nV8E1l6i-CyL-koas_xTGTjyQpu_3HM4nocUMZEq1gMTttKdBelklbTrqmhfSVLRJovDtsUny0X6QDw2Cppvh56ge7oOcwoSTZsQNwfTeQp_7Ewh2Z8zyssHgvln8AkRabRTw/s1600/IMG_6668.jpg" onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}"></a><br /><span class="Apple-style-span" ><span class="Apple-style-span" style="line-height: 14px; ">6 years ago this morning I was honored to bring an amazing little girl into this world...allowed to snuggle and memorize her face for a few minutes before she was taken to NICU. Faith, you have taught me a love I never knew existed and you have touched many lives. You are beautiful through and through, strong, compassionate and ALWAYS see the glass half full. </span>You teach me new things EVERY day. I will be by your side and love you always. I'm glad you got beach time today! Happy Birthday precious!</span><div><span class="Apple-style-span" ><span class="Apple-style-span" style="font-family: Georgia, serif; font-size: 16px; color: rgb(0, 0, 0); "><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiU2ngkbo2Y6nXEbMWL_a0PayIWFsbEOSHz32KQvkd6eFd-dC1WS6r36ndzJQig4Tx4nauTJFfWxit738fzcLbCVYVeeUYoRc37ePQrW1eY4hnejgmhLaG3K1erkFWAK8-vSRE7cdUb_mc/s1600/IMG_6512+%25281%2529.JPG" onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}"><img src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiU2ngkbo2Y6nXEbMWL_a0PayIWFsbEOSHz32KQvkd6eFd-dC1WS6r36ndzJQig4Tx4nauTJFfWxit738fzcLbCVYVeeUYoRc37ePQrW1eY4hnejgmhLaG3K1erkFWAK8-vSRE7cdUb_mc/s320/IMG_6512+%25281%2529.JPG" border="0" alt="" id="BLOGGER_PHOTO_ID_5597504297179316258" style="cursor: pointer; width: 320px; height: 214px; " /></a></span><br /></span><div><span class="Apple-style-span" ><br /></span></div></div></div></div>Faithhttp://www.blogger.com/profile/05879331598882462876noreply@blogger.com0tag:blogger.com,1999:blog-1530181162376293362.post-1157434794915699172011-02-21T20:19:00.000-08:002011-04-19T20:41:57.957-07:002011 FebruaryAlthough she gets a little nervous, Faith has been enjoying her art and science class on Fridays. Her 6th birthday is coming up next month! We talked it over and decided to purchase a handful of Disney on Ice tickets and take some kids with us to enjoy the show in celebration of her birthday rather than having an actual party this year. We loaded the car with cousins and drove to Arco Arena to have a great time. Popcorn, cotton candy, princesses and big smiles......she was in heaven!<div><br /></div><div>I am in awe each year that passes that Faith has yet to be put in the hospital for reasons related to cystic fibrosis. She is such a strong little fighter with a heart of gold.</div><div><div><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgbkUf_6W5wDs0RJ41D_YU7jflAnPU71CAdO6tWliLF5Epw9DgkeOp3U9a7jTuMSCOvMYJL2ien57ZpHbG3dHpeBVXa3PNKXvRDp5VEWmzQTfX2GuU1r23wCjPFX1FZxwam6DY8oQz3SH4/s1600/photo+%25284%2529.JPG" onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}"><img style="cursor:pointer; cursor:hand;width: 320px; height: 240px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgbkUf_6W5wDs0RJ41D_YU7jflAnPU71CAdO6tWliLF5Epw9DgkeOp3U9a7jTuMSCOvMYJL2ien57ZpHbG3dHpeBVXa3PNKXvRDp5VEWmzQTfX2GuU1r23wCjPFX1FZxwam6DY8oQz3SH4/s320/photo+%25284%2529.JPG" border="0" alt="" id="BLOGGER_PHOTO_ID_5597501206478031410" /></a><div><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgbkUf_6W5wDs0RJ41D_YU7jflAnPU71CAdO6tWliLF5Epw9DgkeOp3U9a7jTuMSCOvMYJL2ien57ZpHbG3dHpeBVXa3PNKXvRDp5VEWmzQTfX2GuU1r23wCjPFX1FZxwam6DY8oQz3SH4/s1600/photo+%25284%2529.JPG" onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}"></a><br /><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgaP09-Og1A17R1_-BMsgk0401be2qki7sx-mZUXxfQIL27J_i2AgU3X5GTuDvp9NdZ3YQqcQ00XiapBcwxGNFJSBlVqTa-pJgXue1TCQ1BIc3Sxoj446x5ZY9Wyt9UrEWd420AZrJ00JE/s1600/photo+%25283%2529.JPG" onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}"><img style="cursor:pointer; cursor:hand;width: 320px; height: 240px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgaP09-Og1A17R1_-BMsgk0401be2qki7sx-mZUXxfQIL27J_i2AgU3X5GTuDvp9NdZ3YQqcQ00XiapBcwxGNFJSBlVqTa-pJgXue1TCQ1BIc3Sxoj446x5ZY9Wyt9UrEWd420AZrJ00JE/s320/photo+%25283%2529.JPG" border="0" alt="" id="BLOGGER_PHOTO_ID_5597501141705984690" /></a><br /><br /></div></div></div>Faithhttp://www.blogger.com/profile/05879331598882462876noreply@blogger.com0tag:blogger.com,1999:blog-1530181162376293362.post-75097745711439095332010-08-30T08:56:00.000-07:002011-04-19T11:27:26.771-07:002010 AugustFaith's given us a little scare recently. It is rare for her to get a fever, but she's had one and she's been complaining of a tummy ache, which moves around slightly to different locations. We called her pulmonologist who ordered an xray right away. So we drove to Folsom to see him and Faith did a great job holding still for the xray, which we were given to take right back to the pulmo. Everything looks clear, except for "normal CF stuff." So, that was a big relief, but of course my mommy ears picked up on the "CF stuff" and my mind races with thoughts of what exactly did that mean? Is there already alot of scar tissue in the lungs? Can he see mucus and striations already? I know there's plenty of depth to that small statement, yet he doesn't elaborate much. He thinks she's had a blockage again. For now, we will continue to monitor her and give extra treatments as well as Miralax twice a week to be sure she doesn't get 'backed up' which has caused her tummy to ache in the past and could lead to major problems...another CF issue.<img src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgmAxgO-E712CWzxEViODyC9reH_PUOQ_oc1i89-41HszvfyNZSvTK09k1z73ziHdTld_HoaKJHhdPG5C2rJhXi1ff7uEqt4j-gkwguFz_2-xmNJQhVopkfKbP12QhKABd-G1EyHo6YQcQ/s320/photo.JPG" style="cursor:pointer; cursor:hand;width: 320px; height: 240px;" border="0" alt="" id="BLOGGER_PHOTO_ID_5597362204075497474" /><div>Here's a cute picture of Faith, Brooke and cousin Jonas playing the Wii.....Faith LOVES Super Mario 3!</div>Faithhttp://www.blogger.com/profile/05879331598882462876noreply@blogger.com0tag:blogger.com,1999:blog-1530181162376293362.post-30045764763873663752010-07-13T16:17:00.000-07:002010-07-13T16:32:54.847-07:00$9300 so far! And a dance recital...As I'm working on emails, etc for "Speeding to a Cure" I've noticed that Team FaithFull has raised over $9300 as of today! More than I expected in such a tough year, but FABULOUS! All the money we raise at the race car event in September will go towards that final total also. Thank you all again who have donated, fundraised and spent your time being involved!!!<div><br /></div><div>Faith had her dance recital over the past weekend. It was adorable. She was front near center and did a great job. She's decided to take a break from dance to 'pursue' other interests like gymnastics, relaxing and playing the Wii for the rest summer in between our out of town trips.</div><div><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj2hhOkmQCqX27irzZMeQTVSi6wvV0RjoXKSl9hXLydr7gJPPxeMmg_6jdamcJgd2Etrp3CROrl-p62Zq22KY28UgNo3dC2alVlns11VNVQ0pIg9aqXOmx2XbgMtqXwDFkU7rT_Gc4Hm4I/s1600/photo+(4).JPG"><img src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj2hhOkmQCqX27irzZMeQTVSi6wvV0RjoXKSl9hXLydr7gJPPxeMmg_6jdamcJgd2Etrp3CROrl-p62Zq22KY28UgNo3dC2alVlns11VNVQ0pIg9aqXOmx2XbgMtqXwDFkU7rT_Gc4Hm4I/s200/photo+(4).JPG" border="0" alt="" id="BLOGGER_PHOTO_ID_5493537061630680626" style="cursor: pointer; width: 150px; height: 200px; " /></a> <a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhe27LrA_yYjS2sB-ni7T5WIchlTwr9YtsamxSZYQGxVeQUs5ROeLRnmo58cYCcN6KPvLlcIDvIYaHzLXuZsBCNm0NXrwMNM2bbr5HZ1KZFJ3fefhl9NWOm4lP2DDDTjHpfu0TKX87m62Y/s1600/photo+(3).JPG"><img src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhe27LrA_yYjS2sB-ni7T5WIchlTwr9YtsamxSZYQGxVeQUs5ROeLRnmo58cYCcN6KPvLlcIDvIYaHzLXuZsBCNm0NXrwMNM2bbr5HZ1KZFJ3fefhl9NWOm4lP2DDDTjHpfu0TKX87m62Y/s200/photo+(3).JPG" border="0" alt="" id="BLOGGER_PHOTO_ID_5493537051075328978" style="cursor: pointer; width: 150px; height: 200px; " /></a></div><div>Ballerina & a Bumble Bee Boogie dance</div><div><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhZ4YDY2sssppliBeNtWJfGcXdCsw7nWxewtBJUhlcz6v7Mjh9ge_JSVxbDU-PITD2VBI4N35mNqVs5VVyj4YGSuqijaCKeAbOPnA5QoPG2I2He_pMQOEOG2F0uPLWPYPcx3nZB0vNseqU/s1600/photo+(1).JPG"><img src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhZ4YDY2sssppliBeNtWJfGcXdCsw7nWxewtBJUhlcz6v7Mjh9ge_JSVxbDU-PITD2VBI4N35mNqVs5VVyj4YGSuqijaCKeAbOPnA5QoPG2I2He_pMQOEOG2F0uPLWPYPcx3nZB0vNseqU/s200/photo+(1).JPG" border="0" alt="" id="BLOGGER_PHOTO_ID_5493537036202690530" style="cursor: pointer; width: 200px; height: 150px; " /></a> <a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjAnH8z5gexuWSLzy-ZTArGOxdE7NYYvm1ryAIZofPGG5X2sAc0UFfx6KmwpyDEK4uy-R2_PeSS_KN_PXRrlKPv-0bkhOY_7c8EckUy0w7H7Zd2MEMbqzAAGzNiaHp5tIxDa5GGBy0LVKc/s1600/photo+(5).JPG"><img src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjAnH8z5gexuWSLzy-ZTArGOxdE7NYYvm1ryAIZofPGG5X2sAc0UFfx6KmwpyDEK4uy-R2_PeSS_KN_PXRrlKPv-0bkhOY_7c8EckUy0w7H7Zd2MEMbqzAAGzNiaHp5tIxDa5GGBy0LVKc/s200/photo+(5).JPG" border="0" alt="" id="BLOGGER_PHOTO_ID_5493537067476438130" style="cursor: pointer; width: 150px; height: 200px; " /></a></div><div>Brooke swimming & Faith playing Wii Fit</div><div><br /></div>Faithhttp://www.blogger.com/profile/05879331598882462876noreply@blogger.com1tag:blogger.com,1999:blog-1530181162376293362.post-32143960348141249652010-06-30T16:24:00.000-07:002010-07-13T14:25:53.179-07:00Breathe Freely, Conner ManMy heart and eyes cry today for seven year old Conner who passed away Thursday, June 24, 2010. He battled cystic fibrosis and prune belly disease, which meant he essentially had no muscles to cough....and with CF, that's a terrible combination. It's evident that he was such a fighter and joyous child yet cystic fibrosis has taken another precious, innocent life.<div><br /></div><div>For many months now his mother, Sarah, has allowed her soul to bleed into each word as she shares their family's story. Thousand of friends and followers of her blog have been given the raw truth about CF, love, life & belief and though we don't know her personally, after reading the posts, it feels as though we do. Conner is survived by his loving parents and 2 younger brothers.</div><div><br /></div><div>As mentioned before, at the Sacramento Greatstrides walk, Team FaithFULL (along with many other teams nationwide) wore red on our shirts to honor Conner with his favorite color and show our support. Today his family laid him to rest and all the world who knew of him wears red and cries out. May his famiy find some peace today that he is no longer in pain and may their precious memories never ever fade. Breathe freely Conner...the fight against CF will continue and your spirit lives on! Squeeze your little ones a little tighter today, love them a little more...</div><div><span class="Apple-style-span" style="font-family:georgia;"><span class="Apple-style-span" style="font-size:x-large;"><span class="Apple-style-span" style="color:#3366FF;"><br /></span></span></span></div><div><span class="Apple-style-span" style="font-family:georgia;"><span class="Apple-style-span" style="font-size:x-large;"><span class="Apple-style-span" style="color:#3366FF;">"Perhaps they are not stars, but rather openings in Heaven where the light of our loved ones passes through."</span></span></span></div><div><a href="http://www.blogger.com/www.notsobrightandshiny.blogspot.com">www.NotSoBrightandShiny.blogspot.com</a></div><span class="Apple-style-span" style=" color: rgb(51, 51, 51); font-family:'lucida grande', tahoma, verdana, arial, sans-serif;font-size:11px;"><div class="UIIntentionalStory_Header"><div><span class="UIStory_Message"><span class="text_exposed_show" style="display: inline; "><br /></span></span></div><div><span class="UIStory_Message"><span class="text_exposed_show" style="display: inline; "><div class="UIIntentionalStory_Header"><h3 class="UIIntentionalStory_Message" ft="{"type":"msg"}" style=" color: rgb(51, 51, 51); margin-top: 0px; margin-right: 0px; margin-bottom: 0px; margin-left: 0px; padding-top: 0px; padding-right: 0px; padding-bottom: 0px; padding-left: 0px; font-weight: normal; overflow-x: hidden; overflow-y: hidden; font-size:13px;"><span class="Apple-style-span" style=" ;font-size:11px;"><a href="http://www.notsobrightandshiny.blogspot.com/" id="" title="" target="_blank" rel="nofollow" style="cursor: pointer; color: rgb(59, 89, 152); text-decoration: none; "><div class="UIMediaItem_Wrapper" style="overflow-x: hidden; overflow-y: hidden; display: inline !important; "><img class="img" src="http://external.ak.fbcdn.net/safe_image.php?d=0410ca5ec3bbc5136ad7f16c6d5f30be&w=90&h=90&url=http%3A%2F%2Flh5.ggpht.com%2F_PHqusrO7XtQ%2FTCO25d34API%2FAAAAAAAAAMU%2F8dQB4LUlZ58%2F006_thumb%5B1%5D.jpg%3Fimgmax%3D800" style="border-top-width: 0px; border-right-width: 0px; border-bottom-width: 0px; border-left-width: 0px; border-style: initial; border-color: initial; display: block; " /></div></a></span></h3></div><div class="UIStoryAttachment UIStoryAttachment_InlineInfo" ft="{"type":"attach"}" id="" style="margin-top: 6px; overflow-x: hidden; overflow-y: hidden; padding-right: 10px; margin-bottom: 5px; "><span class="Apple-style-span" style="font-size: large;">Regis & Kelly even wore red for him on their show today! Here they are. I couldn't find a clip of them talking about Conner or CF, but am told that they did.</span></div><div class="UIStoryAttachment UIStoryAttachment_InlineInfo" ft="{"type":"attach"}" id="" style="margin-top: 6px; overflow-x: hidden; overflow-y: hidden; padding-right: 10px; margin-bottom: 5px; "><span class="Apple-style-span" style="font-size: large;"><a href="http://www.youtube.com/watch?v=Pe5st-9UcI8">http://www.youtube.com/watch?v=Pe5st-9UcI8</a></span></div></span></span></div></div><div class="UIStoryAttachment UIStoryAttachment_InlineInfo" ft="{"type":"attach"}" id="" style="margin-top: 6px; overflow-x: hidden; overflow-y: hidden; padding-right: 10px; margin-bottom: 5px; "><div class="UIStoryAttachment_Media UIStoryAttachment_MediaSingle" ft="{"type":"media"}" style="float: left; overflow-x: hidden; overflow-y: hidden; padding-right: 10px; "><div class="UIMediaItem UIMediaItem_Photo"><a href="http://www.facebook.com/photo.php?pid=1493200&id=1186789694" id="" title="" target="" style="cursor: pointer; color: rgb(59, 89, 152); text-decoration: none; "></a></div></div></div></span>Faithhttp://www.blogger.com/profile/05879331598882462876noreply@blogger.com4tag:blogger.com,1999:blog-1530181162376293362.post-85643427549509817492010-06-25T20:59:00.000-07:002010-06-29T21:08:40.025-07:00America's Got Talent!!! CF Awareness!So exciting! <a href="http://www.youtube.com/watch?v=7s7CtPGeEbo">America's Got Talent TV show</a> featured a 7 MINUTE clip on Christina & Ali ages 13 and 20 BOTH with cystic fibrosis! An interview with the sisters revealed that all 4 of the siblings in their family have CF and the two of them sing. It was excellent exposure for CF awareness and although we didn't see the show the night it aired, I heard about it from MANY other people who did. Then, saw the link all over facebook. For those of you who missed it, check it out. The younger one is especially good!<div><br /><div><a href="http://www.youtube.com/watch?v=7s7CtPGeEbo">http://www.youtube.com/watch?v=7s7CtPGeEbo</a></div></div>Faithhttp://www.blogger.com/profile/05879331598882462876noreply@blogger.com0tag:blogger.com,1999:blog-1530181162376293362.post-12305548912344204042010-06-23T15:50:00.000-07:002010-06-30T16:23:04.226-07:00Perfect Flower Girl!<a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhqOZ1_HoFoXwBT1b45WG4TI7YsmgNkhLrg4d_0fbu41uALimbMvRJrWR3R-VVuGRoHhOAgMgxrIt06ZcXuDlCrKC2YKmXYqLG_1ibD7LlRNL1L1n7Wt6XrNAP8v1OtttQocWQIRK1aKYk/s1600/1432.jpg"><img style="cursor:pointer; cursor:hand;width: 200px; height: 150px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhqOZ1_HoFoXwBT1b45WG4TI7YsmgNkhLrg4d_0fbu41uALimbMvRJrWR3R-VVuGRoHhOAgMgxrIt06ZcXuDlCrKC2YKmXYqLG_1ibD7LlRNL1L1n7Wt6XrNAP8v1OtttQocWQIRK1aKYk/s200/1432.jpg" border="0" alt="" id="BLOGGER_PHOTO_ID_5488710476306411250" /></a><br />What a doll. I mean, there's nothing more to say!<div>Faith had a fabulous time in Pismo Beach for the weekend celebrating my good friend, Catheline's, wedding on June 21, 2010. Brooke stayed with Grandpa Marlin and Oma Joan and my mom and Ezra came down for the wedding and helped out tremendously with Faith while the big girls did wedding stuff.</div><div><br /></div><div>Faith got to go the beach in the day and nighttime, ride a train to Santa Barbara, eat clam chowder multiple times, take a gazillion pictures, get nails/toes painted, hair done at the salon and get all dressed up to be a flower girl!</div><div><br /></div>She was SO happy and beautiful!<div><a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh-ZIr5eIKL-6OGvWxlBu3KyAjtqYE3zkwZEbWY74Gv8GGkZ4H-Sx308iaxMFh3jxGDNCemudqXhVCWiB-MX1ai_Vim5xz2Yv9RZwq5CMNALnyZ1LJLXvNbcV3YA34ubqVlzBt-Jzv72uI/s1600/142.jpg"><img style="cursor:pointer; cursor:hand;width: 200px; height: 150px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh-ZIr5eIKL-6OGvWxlBu3KyAjtqYE3zkwZEbWY74Gv8GGkZ4H-Sx308iaxMFh3jxGDNCemudqXhVCWiB-MX1ai_Vim5xz2Yv9RZwq5CMNALnyZ1LJLXvNbcV3YA34ubqVlzBt-Jzv72uI/s200/142.jpg" border="0" alt="" id="BLOGGER_PHOTO_ID_5488709519722000434" /></a> <a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgjdBSofuIwo6uaOTXo3JO1fpklCIyyWgs1tGtJyGY0XXK6tNHXjfoSC1XqiF6NOCl1iXheWp1EYo4U5B1cBhfOXTp6Pq4edR0jYExICv7ZwxWoeNkYORlD7MK9NKB40t6oYwfD7VVN1YI/s1600/100_2855.jpg"><img style="cursor:pointer; cursor:hand;width: 200px; height: 150px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgjdBSofuIwo6uaOTXo3JO1fpklCIyyWgs1tGtJyGY0XXK6tNHXjfoSC1XqiF6NOCl1iXheWp1EYo4U5B1cBhfOXTp6Pq4edR0jYExICv7ZwxWoeNkYORlD7MK9NKB40t6oYwfD7VVN1YI/s200/100_2855.jpg" border="0" alt="" id="BLOGGER_PHOTO_ID_5488709049766616818" /></a></div><div><a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgjdBSofuIwo6uaOTXo3JO1fpklCIyyWgs1tGtJyGY0XXK6tNHXjfoSC1XqiF6NOCl1iXheWp1EYo4U5B1cBhfOXTp6Pq4edR0jYExICv7ZwxWoeNkYORlD7MK9NKB40t6oYwfD7VVN1YI/s1600/100_2855.jpg"></a><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhCIX93ziRZ3VHH1Wb8hTvV-hX9Lm7idEYD5cgCyJZUzpSei5Qo710LXP9V05RYwUOvze7hsLHLeB3QkgcwmTkKbTbidu_VkjRHvHBXJ5US6m4ufS7aiQPDmmOv57tztkzBmeKhCa1_YP0/s1600/052.jpg"><img src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhCIX93ziRZ3VHH1Wb8hTvV-hX9Lm7idEYD5cgCyJZUzpSei5Qo710LXP9V05RYwUOvze7hsLHLeB3QkgcwmTkKbTbidu_VkjRHvHBXJ5US6m4ufS7aiQPDmmOv57tztkzBmeKhCa1_YP0/s200/052.jpg" border="0" alt="" id="BLOGGER_PHOTO_ID_5488709020561817506" style="cursor: pointer; width: 200px; height: 150px; " /></a> <a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg3_ZEF5m3R23mc2RHPCDPYJOpwqrXZdMV_tUp4yGYAs5ub27S08gSeKu-G_0R6Izxus7PF8XlC80lkjir1AtPCGY_jLPrbFJL3owMfJ6zUKu1CPOCvS2Y4cE6DXaEk-FIdD0XXTjMQaLw/s1600/100_2919.jpg"><img src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg3_ZEF5m3R23mc2RHPCDPYJOpwqrXZdMV_tUp4yGYAs5ub27S08gSeKu-G_0R6Izxus7PF8XlC80lkjir1AtPCGY_jLPrbFJL3owMfJ6zUKu1CPOCvS2Y4cE6DXaEk-FIdD0XXTjMQaLw/s200/100_2919.jpg" border="0" alt="" id="BLOGGER_PHOTO_ID_5488709499679210802" style="cursor: pointer; width: 200px; height: 150px; " /></a></div><div><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg3_ZEF5m3R23mc2RHPCDPYJOpwqrXZdMV_tUp4yGYAs5ub27S08gSeKu-G_0R6Izxus7PF8XlC80lkjir1AtPCGY_jLPrbFJL3owMfJ6zUKu1CPOCvS2Y4cE6DXaEk-FIdD0XXTjMQaLw/s1600/100_2919.jpg"></a><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgO-da-NRaGnomyFa2_P4bu0NvVFymJeV6EHrd8mQFR5Gzler1RZ79eLdbVyujDF9VpS6D4rPqY3YH0IkhJVOj1mKAs0iti1_H5hUR3hrfnNDjFagYAKe5mzbT__JDgag25K4xVmJoY6OQ/s1600/099.jpg"><img src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgO-da-NRaGnomyFa2_P4bu0NvVFymJeV6EHrd8mQFR5Gzler1RZ79eLdbVyujDF9VpS6D4rPqY3YH0IkhJVOj1mKAs0iti1_H5hUR3hrfnNDjFagYAKe5mzbT__JDgag25K4xVmJoY6OQ/s200/099.jpg" border="0" alt="" id="BLOGGER_PHOTO_ID_5488709034718595250" style="cursor: pointer; width: 150px; height: 200px; " /></a> <a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiAOijIcyReSNA2PCwiDVn4pZWgIRmU0bN4c2f3btthmDg_7h_TgfwtgkmWHfUvmVLg_uEfcS9VXltdh_kML8hTomjgeXIRwXRcWLsm2T7oSKEzsUPfsSao3QtMhS9G23P4pmvX25DUzIc/s1600/100_2954.jpg"><img src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiAOijIcyReSNA2PCwiDVn4pZWgIRmU0bN4c2f3btthmDg_7h_TgfwtgkmWHfUvmVLg_uEfcS9VXltdh_kML8hTomjgeXIRwXRcWLsm2T7oSKEzsUPfsSao3QtMhS9G23P4pmvX25DUzIc/s200/100_2954.jpg" border="0" alt="" id="BLOGGER_PHOTO_ID_5488709507765775378" style="cursor: pointer; width: 150px; height: 200px; " /></a></div><div><a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgeT_Wx4kMyc8u9NwZj55bDgXEiP425a-nHzp2d6kNRPVtZQn7HdqrDY2eqh1qOWdl0gHgC32_-wwUoCkMUFNbSfPrNEMZXWJR3XYeP_hA7tUEHEnTHUCzAjJtfKiLQRHorTN6Vza3rh4E/s1600/124.jpg"><img style="cursor:pointer; cursor:hand;width: 200px; height: 150px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgeT_Wx4kMyc8u9NwZj55bDgXEiP425a-nHzp2d6kNRPVtZQn7HdqrDY2eqh1qOWdl0gHgC32_-wwUoCkMUFNbSfPrNEMZXWJR3XYeP_hA7tUEHEnTHUCzAjJtfKiLQRHorTN6Vza3rh4E/s200/124.jpg" border="0" alt="" id="BLOGGER_PHOTO_ID_5488708761681980786" /></a> <a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi4Y-G1B5Q6BSG33hgZdtGomVoSn_LmfhDmQnBsNSnuAsIunB_c4laKLPBVcSdsBWctcrLVtDl4-6JAErXH6VACxSQNA_1nG8wjZiquy9U8msbOKtGjj6qo3zflwzypXrwcPZPVgNnQFCA/s1600/122.jpg"><img style="cursor:pointer; cursor:hand;width: 150px; height: 200px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi4Y-G1B5Q6BSG33hgZdtGomVoSn_LmfhDmQnBsNSnuAsIunB_c4laKLPBVcSdsBWctcrLVtDl4-6JAErXH6VACxSQNA_1nG8wjZiquy9U8msbOKtGjj6qo3zflwzypXrwcPZPVgNnQFCA/s200/122.jpg" border="0" alt="" id="BLOGGER_PHOTO_ID_5488708750729637906" /></a><br /><br /></div>Faithhttp://www.blogger.com/profile/05879331598882462876noreply@blogger.com0tag:blogger.com,1999:blog-1530181162376293362.post-63331973067264348792010-06-17T15:32:00.000-07:002010-06-30T16:24:27.230-07:00Quarterly CF Team AppointmentOops, I almost forgot the appointment until they called to remind me! I'd never written it into my all encompassing calendar of events, but we made it work.<div><br /></div><div>THANK GOODNESS our favorite nurse, Kasey, is BACK from her leave! She looked beautiful and refreshed and noted that she's ready to focus on work. We love her. I first met her the day I was in labor. She sat with me, cried with me and unbeknownst to us all then, that was the first day she became a part of our family because 2 weeks later Faith was officially diagnosed with cystic fibrosis. We've seen her at least every 3 months for the past 5 years.</div><div><br /></div><div>Morgan couldn't make it to the appointment due to work and my forgetfulness. My good friend Tiffany watched Brooke so I didn't have to take both girls by myself. Faith did well as usual. She stayed busy on a workbook or playing games on the phone. Her lungs sounded clear, a throat culture was taken and the bad news....she's lost a pound. Ugh, again. Weight gain is always our issue. She just doesn't have a big appetite as it is, but then add on that she was on antibiotics for 4 weeks and it's warm outside and it doesn't help matters. Plus, her high calorie drink that she usually has daily (375 calories with breakfast) we are no longer receiving due to a change in insurance and pharmacies. Looking into options to get them back....</div><div><br /></div><div>That weight loss puts her right back to the 50% range for BMI....to me that's a C- if we're grading it. Not her fault. Not anyone's fault really b/c we always try very hard to get her eating, but I still take it personally and think what more can we be doing? </div>Faithhttp://www.blogger.com/profile/05879331598882462876noreply@blogger.com0tag:blogger.com,1999:blog-1530181162376293362.post-81987887722815509372010-05-29T20:37:00.000-07:002010-06-29T20:59:25.651-07:00Preschool GraduationFaith's been attending the same preschool for just over 2 years. I've sent her there between 1-2 days each week for a little extra socialization. Over the past year I've noticed it's really helped her 'shyness.' Not always, but often she will now talk more openly with people and it's great to see. Really, it's great to be able to share her with other people (I wanted to say 'to share her with the world,' but maybe that's a bit overboard). Faith is such a joy, a treat, and a delight to be around. I feel like, "How could she NOT make the world and anyone she meets happy? All she has to do is start talking or even smile a little with her big cheesy grin and bright blue eyes." When she does or says something so sweet that is just so her I find myself all teary with happiness. That's one of the best parts about being a mom. <div><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhY8wCLeIE6vww1DEbvaJLuNOE6mGr5Ku-mG3RJHqgavuyrXwtAoTInBZPklmatbL2oQ4hVJgk0OFRL5uXvJ0bvXCifeRD5Dk0mfMHLt8-Di7uCk6yrtKrjPN-X74ybTb_-q7msK7cnBP0/s1600/100_2685.JPG"><img src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhY8wCLeIE6vww1DEbvaJLuNOE6mGr5Ku-mG3RJHqgavuyrXwtAoTInBZPklmatbL2oQ4hVJgk0OFRL5uXvJ0bvXCifeRD5Dk0mfMHLt8-Di7uCk6yrtKrjPN-X74ybTb_-q7msK7cnBP0/s200/100_2685.JPG" border="0" alt="" id="BLOGGER_PHOTO_ID_5488409906641647618" style="cursor: pointer; width: 200px; height: 150px; " /></a> <a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiACmr33J8PCuFpdvPXbpP02kXpUBZBFhgMvpQgW6SnaGvkiQsiK9CgC5IXFhxoSyCT4Ycb7wl-UcdocilMNQoGI9_fa3L7xg1txLMfO0vyhj1JR0VuUrgmDzLrQ3_eK43FfFwPSvrLq_A/s1600/100_2700.JPG"><img src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiACmr33J8PCuFpdvPXbpP02kXpUBZBFhgMvpQgW6SnaGvkiQsiK9CgC5IXFhxoSyCT4Ycb7wl-UcdocilMNQoGI9_fa3L7xg1txLMfO0vyhj1JR0VuUrgmDzLrQ3_eK43FfFwPSvrLq_A/s200/100_2700.JPG" border="0" alt="" id="BLOGGER_PHOTO_ID_5488409916017713250" style="cursor: pointer; width: 150px; height: 200px; " /></a></div><div>So I was talking about preschool...Faith doesn't need to to any treatments there b/c she only attends for a few hours at a time. During snack she does take her enzyme pills, but after the other kids were told about them the first day, they didn't really mind and no one treats her any different to my knowledge. Miss Debbie is incredibly thoughtful and cautious to warn us when other children have been sick and Faith loves her dearly. The last few weeks of the school year, I could tell she was ready for a break b/c she would be pretty tired when I picked her up and often complained that she got very tired when they took long walks (still good for her). In true Faith fashion, she ALWAYS had a bunch of weed, er, "wishing" flowers for me that she'd collected along the way. I wonder if she'll be sad when we take Brooke to the 'bus' for preschool next year and she doesn't get to go. I also wonder how Brooke will do. Faith will be homeschooled. I'll have to write more about that as it gets closer.....kindergarden, I can't believe it!</div><div><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjIyzVrrCBxKH-G8a0w7xjLRpn4j8gK7UbILkgiHPvcI1hX1ngAko5LUfUJJJaXr3yunPpGf0h2-G-SIY45tuOKW7kR_3Y8GzgQoeJfWoK4FszU-p-jK8FmSQFa7Z4GcDW2bmxBYjWVRaY/s1600/100_2715.JPG"><img src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjIyzVrrCBxKH-G8a0w7xjLRpn4j8gK7UbILkgiHPvcI1hX1ngAko5LUfUJJJaXr3yunPpGf0h2-G-SIY45tuOKW7kR_3Y8GzgQoeJfWoK4FszU-p-jK8FmSQFa7Z4GcDW2bmxBYjWVRaY/s200/100_2715.JPG" border="0" alt="" id="BLOGGER_PHOTO_ID_5488409925664371410" style="cursor: pointer; width: 142px; height: 200px; " /></a> <a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhxf_7s3QoFZkRs89eHorx7EUcPLjyO58si6zT9vnXCrQCepwxtBiMoqEDPzNSSlhuh4Lw4U25mfscTFQH9GrQ2cHidzORZJH5Y5YC-vsEldeqPCzU04cUk8YcAEr1cG8P5lfwIRDSpeAA/s1600/100_2737.JPG"><img src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhxf_7s3QoFZkRs89eHorx7EUcPLjyO58si6zT9vnXCrQCepwxtBiMoqEDPzNSSlhuh4Lw4U25mfscTFQH9GrQ2cHidzORZJH5Y5YC-vsEldeqPCzU04cUk8YcAEr1cG8P5lfwIRDSpeAA/s200/100_2737.JPG" border="0" alt="" id="BLOGGER_PHOTO_ID_5488409938148795074" style="cursor: pointer; width: 200px; height: 150px; " /></a></div><div>The graduation went well. The kids all gave their moms a flower as they entered to the 'graduation song' and sung us a bunch of songs that they'd learned over the year. Towards the end, Miss Debbie called the kids out one by one to give them their book of creations that the teachers compiled, which is always fun to see b/c everything isn't sent home during the year. While she was speaking, there was a rainbow directly behind Miss Debbie, not sure if she ever knew it :) Great moment. Everyone celebrated with ice cream afterward and Faith was very happy. Morgan and I enjoyed a date night at the Tim McGraw concert the next night :)</div><div><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiZ2OzVa5dwlEFZCmTLsOwbFEKVOaq9GsRqKdJugpv1jmuCPv-8gUHkiXurHONRTGDWb2AmpWAMs6A3nmQ0aZH1VTJoFmEz2n045F7tl2_IAXEom1HHVlgitGjSwJkfXsoHliqOL-KqjXM/s1600/100_2736.JPG"><img src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiZ2OzVa5dwlEFZCmTLsOwbFEKVOaq9GsRqKdJugpv1jmuCPv-8gUHkiXurHONRTGDWb2AmpWAMs6A3nmQ0aZH1VTJoFmEz2n045F7tl2_IAXEom1HHVlgitGjSwJkfXsoHliqOL-KqjXM/s200/100_2736.JPG" border="0" alt="" id="BLOGGER_PHOTO_ID_5488409929023888146" style="cursor: pointer; width: 150px; height: 200px; " /></a> <a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhJmdhKh0KFFs0nWuv03UUIfRkwe7nWX00oQAO9QFXSWu3xIHHQBbLroIz4KO9W_tRE_jC3lkeAmvUUOIfNxDZSUNGePJ3uh9qrc647XiNx27Fpwbn0HQsgumRP3WLBBH58sk8IyngVcSM/s1600/tim1.jpg"><img src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhJmdhKh0KFFs0nWuv03UUIfRkwe7nWX00oQAO9QFXSWu3xIHHQBbLroIz4KO9W_tRE_jC3lkeAmvUUOIfNxDZSUNGePJ3uh9qrc647XiNx27Fpwbn0HQsgumRP3WLBBH58sk8IyngVcSM/s200/tim1.jpg" border="0" alt="" id="BLOGGER_PHOTO_ID_5488411367231627810" style="cursor: pointer; width: 200px; height: 150px; " /></a></div>Faithhttp://www.blogger.com/profile/05879331598882462876noreply@blogger.com0tag:blogger.com,1999:blog-1530181162376293362.post-18714448698728671662010-05-17T17:06:00.000-07:002010-06-29T20:56:10.703-07:00Disneyland 2010Conveniently, there's an annual CDA dental convention right next to Disneyland. The cost for our whole family to drive down, stay and play was little more than myself flying down, renting a car and getting a hotel for the weekend. So that was my excuse :)<div><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiQpEq3F73Oh1prhFB7B3eO4RYwIhvZsVgn_3N2hnbKKg-vIM0B1Pi-GStoZ7_qvhiUpew-xm1BK2U56ltbS4xGrYt8UOcO4PAYcYeXzNmU-O-2azUFnj2p8TXUB721vTN3KPb1-WYc0zo/s1600/100_2543.JPG"><img src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiQpEq3F73Oh1prhFB7B3eO4RYwIhvZsVgn_3N2hnbKKg-vIM0B1Pi-GStoZ7_qvhiUpew-xm1BK2U56ltbS4xGrYt8UOcO4PAYcYeXzNmU-O-2azUFnj2p8TXUB721vTN3KPb1-WYc0zo/s200/100_2543.JPG" border="0" alt="" id="BLOGGER_PHOTO_ID_5488370403263761234" style="cursor: pointer; width: 200px; height: 150px; " /></a></div><div>The girls did well on the road down...I think the final total of "Are we there yet(s)? was about 28. Yes, we counted. There are VERY few perks to a chronic illness like cystic fibrosis, but there is a BIG one when it comes to the happiest place on earth. Faith is allowed to have a pass that gets her and up to 5 guests either to the front of the line, up through to fast pass or even up the exit in many cases, on EVERY ride. A major bonus at Disneyland. All we have to do is renew it quickly each time we go. It's free and no further questions are asked for the rest of the trip as to why we have it. The greatest thing is that we don't have to wait in long lines when it's hot or be fearful of the people and the germs standing next to us in line. Because the girls are so young, we love that we're able to get through the park and rides much faster than we would without that pass. So THANK YOU DISNEY!</div><div><br /></div><div>Despite my warnings to Morgan about ruining the whole trip for Brooke if we didn't start off super slow, our first ride was Soarin' Over California. Faith squeeled with the excitement that we were flying and Brooke's whole body shook with fear as she cried the whole time while trying to get out of her seat and into my lap...and that was the beginning.</div><div><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgpYamcj44lVnaJzd6hqurWwKliLWU2f4sxtrd8NZdj9teyjUr8eNri9BohQNjLBR2WVYA8RBAR26CcmJXebdSflDUUv1mn4X0c5IR7tP3nn3VbZ14qwzskCRoqYROqCmPx2v1evcNkw1Y/s1600/100_2560.JPG"><img src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgpYamcj44lVnaJzd6hqurWwKliLWU2f4sxtrd8NZdj9teyjUr8eNri9BohQNjLBR2WVYA8RBAR26CcmJXebdSflDUUv1mn4X0c5IR7tP3nn3VbZ14qwzskCRoqYROqCmPx2v1evcNkw1Y/s200/100_2560.JPG" border="0" alt="" id="BLOGGER_PHOTO_ID_5488370424528761922" style="cursor: pointer; width: 200px; height: 150px; " /></a><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiQ7RQws-rNptb5M5NQHNbIn4bo_uj5WHlQpe7K-e-tIVP55enwxa1IbWkzCB1nhteOGN2XsekpO0QS_BbjdwujJUbDb6SlVzglqpgF_r9rAvHMCXxwOyd31NyzV7yE1xjgXMK8KC40K5A/s1600/100_2552.JPG"><img src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiQ7RQws-rNptb5M5NQHNbIn4bo_uj5WHlQpe7K-e-tIVP55enwxa1IbWkzCB1nhteOGN2XsekpO0QS_BbjdwujJUbDb6SlVzglqpgF_r9rAvHMCXxwOyd31NyzV7yE1xjgXMK8KC40K5A/s200/100_2552.JPG" border="0" alt="" id="BLOGGER_PHOTO_ID_5488370412075249378" style="cursor: pointer; width: 150px; height: 200px; " /></a></div><div>Intermittently throughout the weekend I went to the convention to take a few continuing education courses and pick up some samples. Morgan would take the girls swimming and once even braved D-Land alone for a few hours with them! Brooke never really did like the whole concept and for all 3 days we went. She didn't want to talk to or take pictures with most of the characters, would run away when we tried to take her picture, didn't want her face painted and kept wanting to go home. At <i>every</i> ride she'd ask if it was dark or flying or had stars and then say she was scared. The chosen few rides that made her happy list were Small World, Buzz Lightyear, the carousel and Toy Story (one of our favs as well). It sounds so awful, but it's not like we didn't <i>try <span class="Apple-style-span" style="font-style: normal;">to help her enjoy the place.</span></i> Faith liked most every ride, but wasn't too happy with Tower of Terror this year. The new Turtle Talk with Crush was a brief yet cute new show we all liked, too.</div><div><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjC-RNKq08O9Tapt5Fn5XjmHzkfhLmO1MyqvnW5sQRm_FynQxB1NNofq58kZmuD8T5kNSRieu0547GpWm4O9kO1gqGZ-M384ZnKlP7Uhgbz1GKTVV8wx-c0GPZUmIuTp2CUC6li5PNtnXQ/s1600/100_2587.JPG"><img src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjC-RNKq08O9Tapt5Fn5XjmHzkfhLmO1MyqvnW5sQRm_FynQxB1NNofq58kZmuD8T5kNSRieu0547GpWm4O9kO1gqGZ-M384ZnKlP7Uhgbz1GKTVV8wx-c0GPZUmIuTp2CUC6li5PNtnXQ/s200/100_2587.JPG" border="0" alt="" id="BLOGGER_PHOTO_ID_5488370428721813778" style="cursor: pointer; width: 150px; height: 200px; " /></a><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg7pRgATn3YySVVnm-Uj-RO_ueFL-_ApX9Id_f2KSfMtyVx2Dov_YxXo5sNn23RkU6Wa2xrNWw8_NvUdS40mh1602-U3kvIncWZY9biUyGd5jHc6pdp_GeStWdvw6PVRwOufk-r_uHhVWU/s1600/100_2590.JPG"><img src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg7pRgATn3YySVVnm-Uj-RO_ueFL-_ApX9Id_f2KSfMtyVx2Dov_YxXo5sNn23RkU6Wa2xrNWw8_NvUdS40mh1602-U3kvIncWZY9biUyGd5jHc6pdp_GeStWdvw6PVRwOufk-r_uHhVWU/s200/100_2590.JPG" border="0" alt="" id="BLOGGER_PHOTO_ID_5488370915256593394" style="cursor: pointer; width: 200px; height: 150px; " /></a></div><div>On the road home, Brooke refused to take her Dramamine so she wouldn't get car sick...so she got car sick...twice. Overall we had a good trip, but won't be crazy to go back too soon unless we have another excuse.<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg7pRgATn3YySVVnm-Uj-RO_ueFL-_ApX9Id_f2KSfMtyVx2Dov_YxXo5sNn23RkU6Wa2xrNWw8_NvUdS40mh1602-U3kvIncWZY9biUyGd5jHc6pdp_GeStWdvw6PVRwOufk-r_uHhVWU/s1600/100_2590.JPG"></a></div><div><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjFqWuhDhyuxhtbiQpDjMNmhZjiZQVzJaup0pMA_yEvCo32rTlg67Mq-RXvzjSJYICQW6dccQ4yACnl3mciXnReq82fvViJW4je5ACMBSusCwIiEz53ZDrc1O33Wqp66VQxDZGRNJrHX_k/s1600/100_2531.JPG"><img src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjFqWuhDhyuxhtbiQpDjMNmhZjiZQVzJaup0pMA_yEvCo32rTlg67Mq-RXvzjSJYICQW6dccQ4yACnl3mciXnReq82fvViJW4je5ACMBSusCwIiEz53ZDrc1O33Wqp66VQxDZGRNJrHX_k/s200/100_2531.JPG" border="0" alt="" id="BLOGGER_PHOTO_ID_5488370392355805122" style="cursor: pointer; width: 150px; height: 200px; " /></a><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgPzA-4GXTd2FFZcYT3ngxJFc13bAfAfuU65ZMUvg-DQ3QPNcyUwZlXUiYFaxzmnIqUQD8667VgEFpHmgIZth51ZPRgwvRWAS8s3LngazxEpv0gjbJ50xJV98km6EISYoG6Bh2SKZa-SJ0/s1600/100_2598.JPG"><img src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgPzA-4GXTd2FFZcYT3ngxJFc13bAfAfuU65ZMUvg-DQ3QPNcyUwZlXUiYFaxzmnIqUQD8667VgEFpHmgIZth51ZPRgwvRWAS8s3LngazxEpv0gjbJ50xJV98km6EISYoG6Bh2SKZa-SJ0/s200/100_2598.JPG" border="0" alt="" id="BLOGGER_PHOTO_ID_5488370923831705634" style="cursor: pointer; width: 150px; height: 200px; " /></a></div>Faithhttp://www.blogger.com/profile/05879331598882462876noreply@blogger.com0tag:blogger.com,1999:blog-1530181162376293362.post-79028849428895169642010-05-10T18:55:00.000-07:002010-06-29T17:05:54.635-07:00Of course it's on a Friday afternoon...The next few months will be a bit of a whirlwind of activities, though I'm not sure it ever really isn't. After the excitement of the walk, we went to the Roseville speedway to watch Uncle Pat race around the track. It was incredibly hot, but Faith was ecstatic to see that he won a trophy! We were sure to pump her with fluids, fan her and even get an ice cream treat, but her little face was covered in the salt of a sweaty CFer as you can see from the picture. One of the obvious symptoms of a person with cystic fibrosis is salty skin, you can lick their forehead (ya, why not?) and it's immediately obvious.<div><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhjjdaXYxdz1XuMuF1g20QtBrcj01jVB2KFlUrtmmGMitCV2fMSj5a7TBiEDYMNFwo30-Ygqv4WT0YTXTGI8_qSafoCxB6ifGXgkkDnjvKgcdqAVB6gfhnFIEps61NYB8XrUeqIRNB4FuE/s1600/100_2286.JPG"><img src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhjjdaXYxdz1XuMuF1g20QtBrcj01jVB2KFlUrtmmGMitCV2fMSj5a7TBiEDYMNFwo30-Ygqv4WT0YTXTGI8_qSafoCxB6ifGXgkkDnjvKgcdqAVB6gfhnFIEps61NYB8XrUeqIRNB4FuE/s320/100_2286.JPG" border="0" alt="" id="BLOGGER_PHOTO_ID_5487643311466896130" style="cursor: pointer; width: 240px; height: 320px; " /></a><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiBEHm7YF-jOpMzhl5bO1_H1PYhUYeMGR5yTMe5JXeqj6t7R8kMPz6lEanaxODwKOC541kRI7Y6HgK8ECcgFHj6av6zLL89coVKCxBSClJTMo8rg-GrtejymlwQIYlWzJCcLhFXyUZzs2c/s1600/100_2292.JPG"><img src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiBEHm7YF-jOpMzhl5bO1_H1PYhUYeMGR5yTMe5JXeqj6t7R8kMPz6lEanaxODwKOC541kRI7Y6HgK8ECcgFHj6av6zLL89coVKCxBSClJTMo8rg-GrtejymlwQIYlWzJCcLhFXyUZzs2c/s320/100_2292.JPG" border="0" alt="" id="BLOGGER_PHOTO_ID_5487643063165142594" style="cursor: pointer; width: 320px; height: 240px; " /></a><div>Later that week she got to ride in a huge stretch limo for her good friend Olivia's birthday.</div><div><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiTCeWCSIX2Py1PZDSAD6bEPR_9ZMrmhAzvcBFCSUIU39BOWUi_4E6YpZLNjDN64OLfc67BNLADUI6OWja00Ko7QIO7EtdSlT3yfGVU5YXnyEpcAKcSkA5oexhlIbfsfjlbQVb5i5Ss8rM/s1600/100_2321.JPG"><img src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiTCeWCSIX2Py1PZDSAD6bEPR_9ZMrmhAzvcBFCSUIU39BOWUi_4E6YpZLNjDN64OLfc67BNLADUI6OWja00Ko7QIO7EtdSlT3yfGVU5YXnyEpcAKcSkA5oexhlIbfsfjlbQVb5i5Ss8rM/s320/100_2321.JPG" border="0" alt="" id="BLOGGER_PHOTO_ID_5487644049090127602" style="cursor: pointer; width: 222px; height: 320px; " /></a>By Friday afternoon, of <i>course</i> it's on a Friday afternoon, Faith was holding her ear and crying about it hurting. She only rarely cries about pain so I figured it was serious and called her pediatrician. I pulled the CF card b/c he's told us before if it's important that she see him he'd make time and he did! We hurried over and he confirmed that she actually had a DOUBLE ear infection, poor baby girl. She literally finished the previous antibiotics exactly one week ago. There's always fear in my mind when she's put on another antibiotic b/c I don't want the 'bad bugs' to become accustomed to them, thereby allowing the bugs to become strong enough that antibiotics won't work. At this point though, what's important is that she's healthy and out of pain. A prescription for 10 days of Augmentin and an ear drop pain reliever and she was feeling better by the next day which was Stephanie's good friend Catheline's wedding shower for which Faith is the FLOWER GIRL! By the end of the party, she'd decided to take a nap on the couch for a needed rest.</div><div><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjgRv1EjHaJTXz-6qRQkRUIR0PJ5cXm_Yo1nXOlryfYqVpal5roX4t_bwgjCjk7cY0h0zHIl16lUpFnokC4Z6Np3B-6SqPXs3aual4KpFIKOo_3_uKoe2kq95-kU7nB3tFaFjDHVdokU1M/s1600/100_2389.JPG"><img src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjgRv1EjHaJTXz-6qRQkRUIR0PJ5cXm_Yo1nXOlryfYqVpal5roX4t_bwgjCjk7cY0h0zHIl16lUpFnokC4Z6Np3B-6SqPXs3aual4KpFIKOo_3_uKoe2kq95-kU7nB3tFaFjDHVdokU1M/s320/100_2389.JPG" border="0" alt="" id="BLOGGER_PHOTO_ID_5487644832460396002" style="cursor: pointer; width: 252px; height: 320px; " /></a><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjZs-INsw-_rwquZ4dhYraoGv3Es5am5qkNGZ2jJxetFMQLZAefR45I4kRRIcRMvys5sTio2s4kcCYcasMPhCr2CKJLyFoDFVJKvjbEwl1zP4P_VFvso3Oa5W3U0NDstIK-weCVOWTWucU/s1600/100_2491.JPG"><img src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjZs-INsw-_rwquZ4dhYraoGv3Es5am5qkNGZ2jJxetFMQLZAefR45I4kRRIcRMvys5sTio2s4kcCYcasMPhCr2CKJLyFoDFVJKvjbEwl1zP4P_VFvso3Oa5W3U0NDstIK-weCVOWTWucU/s320/100_2491.JPG" border="0" alt="" id="BLOGGER_PHOTO_ID_5487644839911215138" style="cursor: pointer; width: 240px; height: 320px; " /></a></div><div>Mother's day was the following day and after church I was treated to a pedicure with the family girls, then we walked around the Fountains. At school, Faith had made an adorable flower arrangement out of a plastic bottle, sand and paper flowers...it sits in my closet so I see it every day :)</div><div><br /></div></div>Faithhttp://www.blogger.com/profile/05879331598882462876noreply@blogger.com0tag:blogger.com,1999:blog-1530181162376293362.post-79417509542251477342010-05-02T21:39:00.000-07:002010-07-01T09:39:10.669-07:00GREATSTRIDES 2010<div>May 2, 2010</div>We did it! Year #6 of walking as Team FaithFULL on May 1, joined by 66 walkers, 1 fur person and over 10 who couldn't make it. Together, we've raised OVER $7500 this year and as a Sacramento whole, close to $110,000!<div><br /></div><div>The weather cooperated incredibly well this year (making up for last year's rain), the walk route was a little longer and made for a fabulous stroll. I was asked to share a few words about why I became involved in volunteering for the Cystic Fibrosis Foundation and didn't expect to get emotional multiple times...it happens I guess. It's always a challenge to be sure to talk with everyone and I always wish the event was a little longer just so that I can spend equal time. My drive home consists of going over in my head what were the great parts, what we could improve on for next year and a reflection upon the many meaningful, though brief, conversations with people from our own team whom are friends or family we rarely get to see, people from the CF community and new people. I am constantly amazed at the support, love and willingness of all of you who are able to donate and/or come walk with us. To have one of the largest teams for multiple years in a row is so amazing to me it's really hard to put into words. So my 'problem' of not getting to chat with everyone is a good one to have :)</div><div><br /></div><div>This year our team added red ribbons to our walk shirts in honor of a little boy named Connor who's favorite color is fire engine red. He has CF and is not doing so well. Connor most likely will not live to his next birthday and get to experience more than 7 years of life. His mother keeps a blog at www.notsobrightandshiny.blogspot.com which I've followed for weeks now and have a hard time reading all the way through without breaks to dry my sobbing eyes. His story is heartbreaking and an incredible reminder that CF is real and in desperate need of a cure. And for everyone, it's a strong reminder to hug and love the ones we love with all we have while we can....</div><div><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh7OpOP38I6A98jpk7AA3Ug8C0HbZ6r85PT5zyU85da5eHtx_5fIL-jV8W_n461C7l6kd0rS9n1FH__f23M9q3qMvrRKhUNogpAwCpghb6-1fiXuNfCkj_P9LFEjJ-jUQGoptyoW4TfVu0/s1600/100_2310.JPG"><img src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh7OpOP38I6A98jpk7AA3Ug8C0HbZ6r85PT5zyU85da5eHtx_5fIL-jV8W_n461C7l6kd0rS9n1FH__f23M9q3qMvrRKhUNogpAwCpghb6-1fiXuNfCkj_P9LFEjJ-jUQGoptyoW4TfVu0/s200/100_2310.JPG" border="0" alt="" id="BLOGGER_PHOTO_ID_5488978130308201042" style="cursor: pointer; width: 200px; height: 150px; " /></a></div><div>So thank you, from the bottom of our hearts, for your care, concern, love, prayers, help and support. We love you.</div><div> <a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjkVq5yp-97Ruwml_tePsZOLEw_kRNr-c3HiB3F3EnKtTc4xuBD7CIIKroLOPeNnFSIAIMc0-0ova-bnT0EizyK0VnjRslgskS_lP9JuvWbZtA42pJdLfOmsY-va5WuWHJlEWySzke2NDw/s1600/100_2227.JPG"><img src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjkVq5yp-97Ruwml_tePsZOLEw_kRNr-c3HiB3F3EnKtTc4xuBD7CIIKroLOPeNnFSIAIMc0-0ova-bnT0EizyK0VnjRslgskS_lP9JuvWbZtA42pJdLfOmsY-va5WuWHJlEWySzke2NDw/s400/100_2227.JPG" border="0" alt="" id="BLOGGER_PHOTO_ID_5478779167294649810" style="cursor: pointer; width: 400px; height: 300px; " /></a></div><div><br /></div>Faithhttp://www.blogger.com/profile/05879331598882462876noreply@blogger.com0tag:blogger.com,1999:blog-1530181162376293362.post-29849134025352558182010-05-02T19:05:00.000-07:002010-06-03T21:39:35.532-07:00Thanks to www.WhyNotExpressIt.com & Crosspointe Community Church<a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh9m66jhpFuPzD7icju-SnmG3_2roq7HmNT6Je8WjDygQP8ldktHpwwGGub7mydwmvC1QC8RUQ6fdo3p_Am0ZJ5B7qsebeL3QSw3-SLO58sNoT12_VEB9rPp7d7uINYARI8hyL0bqYnsKU/s1600/Express+It+logo.jpg"><img style="cursor:pointer; cursor:hand;width: 200px; height: 51px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh9m66jhpFuPzD7icju-SnmG3_2roq7HmNT6Je8WjDygQP8ldktHpwwGGub7mydwmvC1QC8RUQ6fdo3p_Am0ZJ5B7qsebeL3QSw3-SLO58sNoT12_VEB9rPp7d7uINYARI8hyL0bqYnsKU/s200/Express+It+logo.jpg" border="0" alt="" id="BLOGGER_PHOTO_ID_5478772025971018642" /></a> <a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj46TyS0SJpVSCxh9TzcpAyPEU8pdImJj4kYO5i22bGkdX6Dc7QvbaWIlkCfV47_vhrhxZaSu0sy_BmFLRoZzqzbQDXXG9ILMM3471-NognLQXuZtZdsdFuTf_BT3HwwQQN7Ta2kSpL3a0/s1600/100_2258.JPG"><img src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj46TyS0SJpVSCxh9TzcpAyPEU8pdImJj4kYO5i22bGkdX6Dc7QvbaWIlkCfV47_vhrhxZaSu0sy_BmFLRoZzqzbQDXXG9ILMM3471-NognLQXuZtZdsdFuTf_BT3HwwQQN7Ta2kSpL3a0/s200/100_2258.JPG" border="0" alt="" id="BLOGGER_PHOTO_ID_5478773450704589282" style="cursor: pointer; width: 200px; height: 150px; " /></a><br /><div>www.WhyNotExpressIt.com has been generously donating our awesome team walk shirts with Faith's picture on the front for SIX years now! Each year is better than the last! They also print the back of the Sacramento Greatstrides t-shirts that walkers receive for raising $100+ and have done a fantastic job of that for the past few years. Thank you for your kindness and generosity John and Patty Gamble (owners) for many years of support!!!</div><div><br /></div><div><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEicwuNk7P7gE9NLLhWyaIL4betgelEI4H8IuII91C8bbXgyIFRkd-rlTuw60-iucuW6-iMY5ASx1qKhSuSv_BBGu6DcrjdgnBf7Hpymx-CqdNRHqSpNxS-FgbBP9Ebr4evDxEHT9luhWb8/s1600/church.jpg"><img src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEicwuNk7P7gE9NLLhWyaIL4betgelEI4H8IuII91C8bbXgyIFRkd-rlTuw60-iucuW6-iMY5ASx1qKhSuSv_BBGu6DcrjdgnBf7Hpymx-CqdNRHqSpNxS-FgbBP9Ebr4evDxEHT9luhWb8/s200/church.jpg" border="0" alt="" id="BLOGGER_PHOTO_ID_5475026124808954418" style="cursor: pointer; width: 200px; height: 134px; " /></a>www.CrosspointeLincoln.com</div><div>We have attended Crosspointe Community Church in Lincoln since it's opening about 18 months ago. Casey is in the band and a few of us girls help out in the back with the children each month. Almost every month they do a "Change for Change" program, highlighting a worthy cause for us all to give what we can to. This month, Pastor Steve and the church family were kind enough to have Faith's video played at two services...mentioning that Faith who also attends the church has cystic fibrosis. I'm not sure how many people there knew about it before, but now everyone does. Not only did the church as a whole raise hundreds of dollars, but also MANY people ended up coming out to walk with Faith on May 1st as well! Our gratitude runs deep for Steve, Julie and the Crosspointe family. Thank you for bringing more awareness about CF and for helping us in our efforts to find better medications and an eventual cure. We feel your love and prayers and are fully aware of their power. Thank you from our warm and fuzzy hearts to yours!!! Local friends and family are absolutely more than welcome to join us on Sundays at 10AM, every Sunday! The church will be changing locations to Rocklin this summer.</div><div><br /></div><div><div><span class="Apple-tab-span" style="white-space:pre"> </span></div></div>Faithhttp://www.blogger.com/profile/05879331598882462876noreply@blogger.com0tag:blogger.com,1999:blog-1530181162376293362.post-91615231652890393652010-04-15T21:41:00.000-07:002010-06-28T22:05:35.915-07:00Pulmo visit and AntibioticsFaith's had a slight cough for a few days now. It started with a little nasal congestion and has been working it's way downward despite extra time on the Vest and a little Xopenex in the inhaler here and there. <div><br /></div><div>I went ahead and made an appointment in Sacramento with the pulmonologist for her to be checked out...better on a Thursday than the weekend. The Dr. felt similar to how I had. Either her body would rid of the cough in the next 2 days or it would get worse, so it was decided to go ahead and give her 2 weeks of oral antibiotics. Faith requested a pill form this time and gave him a high five, to my surprise! So she should be done with this the day before the Greatstrides walk! Last year at this time she was also ill and had to leave the walk early with Grandpa Marlin when it started raining.</div><div><br /></div><div>Ugh, while leaving the appointment, I found out that our favorite Dr. who's on maternity leave is not coming back! SUPER upset about that. She was a wonderful person and as a Dr. really listened and responded well with great bedside manner. We will be very sad to no longer have her. She had our trust. Our favorite nurse, Kasey, has also been out for a few months, but is due to return sometime in May....we cross our fingers for her to come back refreshed and ready to take on the tough job battling CF with amazing patients like Faith :) She is a truly wonderful rock in our CF Team and family.</div><div><br /></div><div>Antibiotics, let's kick it!<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi6mJJTMwMrUViq3OxFhRhVmpJgJF8mLw63oITctx-bdINRDy-4sBXFTlAE57bHhqjGMGYfm_l1N566e_077h7aS0AtT12juvT1Wxe5VVU9e5x23M0HnF11r_cNL0AZ6YU7oDQlGOQbSEE/s1600/100_2226.JPG"><img src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi6mJJTMwMrUViq3OxFhRhVmpJgJF8mLw63oITctx-bdINRDy-4sBXFTlAE57bHhqjGMGYfm_l1N566e_077h7aS0AtT12juvT1Wxe5VVU9e5x23M0HnF11r_cNL0AZ6YU7oDQlGOQbSEE/s200/100_2226.JPG" border="0" alt="" id="BLOGGER_PHOTO_ID_5488057300133777458" style="cursor: pointer; width: 150px; height: 200px; " /></a></div>Faithhttp://www.blogger.com/profile/05879331598882462876noreply@blogger.com0tag:blogger.com,1999:blog-1530181162376293362.post-87717631363532542882010-04-15T18:23:00.000-07:002010-06-03T21:37:19.635-07:00<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEibOce8VgK0UDxIOEClBugchaVErfJsndZ2eB9yUb1aF3gpK9IRZIY5ltgZ6QJlM8WuuyEcBpeVsBoer-MJTepKsxogOcMnDp-35QIxrS9AbiYZdDLYHAA3mSRlcN8JBlQCN1ie73hbm5E/s1600/100_2149.JPG"><img src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEibOce8VgK0UDxIOEClBugchaVErfJsndZ2eB9yUb1aF3gpK9IRZIY5ltgZ6QJlM8WuuyEcBpeVsBoer-MJTepKsxogOcMnDp-35QIxrS9AbiYZdDLYHAA3mSRlcN8JBlQCN1ie73hbm5E/s200/100_2149.JPG" border="0" alt="" id="BLOGGER_PHOTO_ID_5475016224234028178" style="cursor: pointer; width: 150px; height: 200px; " /></a> <a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEicYmZUqtjoxBU64VOU0P0z9ZlmxbwYMRtl5zcAR2jN66J3KzfB_1rMtVtga1kaY9AoZ2khV51HROqU8kGT0UXDjY4I5ZGxQomkKHKf6cy2rgc6h4tE-tK3SxiaqEnTXrQwkpLwpT5Gayw/s1600/100_2148.JPG"><img style="cursor:pointer; cursor:hand;width: 200px; height: 150px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEicYmZUqtjoxBU64VOU0P0z9ZlmxbwYMRtl5zcAR2jN66J3KzfB_1rMtVtga1kaY9AoZ2khV51HROqU8kGT0UXDjY4I5ZGxQomkKHKf6cy2rgc6h4tE-tK3SxiaqEnTXrQwkpLwpT5Gayw/s200/100_2148.JPG" border="0" alt="" id="BLOGGER_PHOTO_ID_5475016216430004930" /></a>4.15.2010<br /><span class="Apple-tab-span" style="white-space:pre"> <span class="Apple-tab-span" style="white-space:pre"> </span><span class="Apple-style-span" style="white-space: normal; ">Why have the last few Easters had yucky weather? The girls woke up and found that the Easter bunny had left them eggs all inside the house, just in case in rained outside, so they wouldn't get wet. They squealed running around the house to find them all. After church we headed to Nana Fonda and Pampa Marc's house to hang out and play some games.</span></span><div><span class="Apple-tab-span" style="white-space:pre"><span class="Apple-style-span" style="white-space: normal; "></span></span><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiptbskhJXgF-5A_lbnqFmpv8jdA0pgwOXwG36KrIuCUaWRPF-cgVq_N3Ol5oBbmZVxABCjMh1vhDxeyHf4GIolvJyADmgXf0KSUggunlgPIsn9ixwktPcUWMOq5bvn8tAK0FhPpl6R6gk/s1600/100_2142.JPG"><img src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiptbskhJXgF-5A_lbnqFmpv8jdA0pgwOXwG36KrIuCUaWRPF-cgVq_N3Ol5oBbmZVxABCjMh1vhDxeyHf4GIolvJyADmgXf0KSUggunlgPIsn9ixwktPcUWMOq5bvn8tAK0FhPpl6R6gk/s200/100_2142.JPG" border="0" alt="" id="BLOGGER_PHOTO_ID_5475016226960785506" style="cursor: pointer; width: 200px; height: 150px; " /></a><br /><div><div><span class="Apple-tab-span" style="white-space:pre"> </span>By the 7th Faith had a stuffy nose and a couple days later it had turned into a cough so we started the vest treatments twice a day. It's not her favorite thing to do them more than once in the day, but very important that we try in order to reduce the mucus thickening up and leading to infection. She never seemed to actually have a cold, but something was definitely going on....like some CF congestion is the best way I could describe it. On the 15th I'd decided it'd been long enough and she needed to be seen by the pulmonologist. Normally we don't wait this long. He said she was right on the fence as to whether she'd get over it on her own in a couple more days or not. In the long run, he felt it best to nail it with some antibiotics to be sure the congestion would go away. So two weeks of antibiotics starts now.</div><div><span class="Apple-tab-span" style="white-space:pre"><span class="Apple-style-span" style="white-space: normal; "><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjSbV7dVTt_52wMNROh-Oyr8q7XIEl_0-B-45ghcd_nwi_h4XHiWikbcf6798Su6mw1tbkiFadREFfQ3oD-UhUD0W2zV9JnQ4ObI4oJhjSIJwFuGsxP9CLj4WcmL3kx1FTAW6riWEEJruI/s1600/100_2208.JPG"><img src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjSbV7dVTt_52wMNROh-Oyr8q7XIEl_0-B-45ghcd_nwi_h4XHiWikbcf6798Su6mw1tbkiFadREFfQ3oD-UhUD0W2zV9JnQ4ObI4oJhjSIJwFuGsxP9CLj4WcmL3kx1FTAW6riWEEJruI/s200/100_2208.JPG" border="0" alt="" id="BLOGGER_PHOTO_ID_5475016243061570786" style="cursor: pointer; width: 200px; height: 150px; " /></a> <a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjrkUl5US3RwEuZdLzRWHLTe5dbl-Uy1q1mP9gGTnUs3HspX33fyyafoXcirQqvEmrtlxtZKxaUqoXg2KzLNVkXvsEIZMZr7COpbSDgtzceOPChF2u5JWzlUzrCmQmZlRCSDDeWv64dH0U/s1600/100_2215.JPG"><img src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjrkUl5US3RwEuZdLzRWHLTe5dbl-Uy1q1mP9gGTnUs3HspX33fyyafoXcirQqvEmrtlxtZKxaUqoXg2KzLNVkXvsEIZMZr7COpbSDgtzceOPChF2u5JWzlUzrCmQmZlRCSDDeWv64dH0U/s200/100_2215.JPG" border="0" alt="" id="BLOGGER_PHOTO_ID_5475016574542235522" style="cursor: pointer; width: 200px; height: 150px; " /></a></span></span></div><div><span class="Apple-tab-span" style="white-space:pre"> </span>We got to go to the zoo one weekend, Steph's been doing some volunteer work on the upcoming greatstrides for CFF walk May 1 and Faith is officially registered for homeschooling for kindergarden. That should be an adventure. She's already been asking us to teach her to read and upon recommendation from her preschool teacher has read a few small starter books!</div><div><br /></div><div><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh9z7r1G3ZF_4zYMelFezV_5VJ26Ew9zMJvTpsSaIh_8E9jBBheJxfu-ZEhwDarfeLU8ComHnhGtx4Gcgfg6uqdlGV2nRJUgFqifvKQUCXL7_gtu3_p4zYgmoOymV3KScCUyCzrgbmSBgg/s1600/100_2212.JPG"><img src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh9z7r1G3ZF_4zYMelFezV_5VJ26Ew9zMJvTpsSaIh_8E9jBBheJxfu-ZEhwDarfeLU8ComHnhGtx4Gcgfg6uqdlGV2nRJUgFqifvKQUCXL7_gtu3_p4zYgmoOymV3KScCUyCzrgbmSBgg/s200/100_2212.JPG" border="0" alt="" id="BLOGGER_PHOTO_ID_5475016569986027810" style="cursor: pointer; width: 150px; height: 200px; " /></a> <a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj9VZzcZDhQf0wjuc2mW4q9SJoMdZ-H4cLwP8pYFhboz1FZ2YB_ZraqGkT2hn2zeFGQEj36XpGb0IXgzjgWyArJCSfRkxwlsP05TOvTM6rU9wqjmR8sJ-CrjHWuHVE0OvCyz5LVkiBVnnQ/s1600/100_2176.JPG"><img src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj9VZzcZDhQf0wjuc2mW4q9SJoMdZ-H4cLwP8pYFhboz1FZ2YB_ZraqGkT2hn2zeFGQEj36XpGb0IXgzjgWyArJCSfRkxwlsP05TOvTM6rU9wqjmR8sJ-CrjHWuHVE0OvCyz5LVkiBVnnQ/s200/100_2176.JPG" border="0" alt="" id="BLOGGER_PHOTO_ID_5475016235794997234" style="cursor: pointer; width: 150px; height: 200px; " /></a><br /><br /></div></div></div>Faithhttp://www.blogger.com/profile/05879331598882462876noreply@blogger.com0tag:blogger.com,1999:blog-1530181162376293362.post-68976450089505156992010-03-30T18:12:00.000-07:002010-05-24T18:20:41.491-07:00<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiAVZYix08l5pIVVMi6rm7NaS-m67KXF2zxfKWU8aU0BUHQDNWyJSaUdGnTNx_GOqBZLsw3tFiTdhZ19dLvZv6y-woQH7VGEtDMYbJQ0xx4sI_5QLAxNXhN5DJJGYXF-8AwQQBiymOPc_c/s1600/3.10+snd+mt+04.jpg"><img src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiAVZYix08l5pIVVMi6rm7NaS-m67KXF2zxfKWU8aU0BUHQDNWyJSaUdGnTNx_GOqBZLsw3tFiTdhZ19dLvZv6y-woQH7VGEtDMYbJQ0xx4sI_5QLAxNXhN5DJJGYXF-8AwQQBiymOPc_c/s200/3.10+snd+mt+04.jpg" border="0" alt="" id="BLOGGER_PHOTO_ID_5475010109630263074" style="cursor: pointer; width: 200px; height: 150px; " /></a><br />In March we also took the girls to Sand Mountain and Auntie Desiree and Uncle Kel joined us. We had a great, low key time and the weather was pretty nice for us. Faith went to the top of the mountain a couple times, too!<br /><a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjG88DsxbrGoPWC5Le5e3HRLWTBXgAhAENORewH5ci1pY_AtPRfpSTEpCy8SVhTjpJLIlPbTTePU6EKjTMgXnjZX1EI6fCBvFFD2cO2rKooP_KEupICcqK7xic-0c8z2xmPTC3JzhrSqHc/s1600/3.10+snd+mt+01.jpg"><img style="cursor:pointer; cursor:hand;width: 200px; height: 150px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjG88DsxbrGoPWC5Le5e3HRLWTBXgAhAENORewH5ci1pY_AtPRfpSTEpCy8SVhTjpJLIlPbTTePU6EKjTMgXnjZX1EI6fCBvFFD2cO2rKooP_KEupICcqK7xic-0c8z2xmPTC3JzhrSqHc/s200/3.10+snd+mt+01.jpg" border="0" alt="" id="BLOGGER_PHOTO_ID_5475010104837464802" /></a> <a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgnefX33mAmN-fFu5j-kqYTNBP6ryx1c4pdWcuQrruOUfc79onhkRhDh7W9rGvMRFy1dQMZj1cTD1sK1M7M1AYgBv_1dLyrG3kziesiUnvEGL09dhfnKY6B4CSnR90q10S3RujdJ3kKByI/s1600/3.10+snd+mt+07.jpg"><img src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgnefX33mAmN-fFu5j-kqYTNBP6ryx1c4pdWcuQrruOUfc79onhkRhDh7W9rGvMRFy1dQMZj1cTD1sK1M7M1AYgBv_1dLyrG3kziesiUnvEGL09dhfnKY6B4CSnR90q10S3RujdJ3kKByI/s200/3.10+snd+mt+07.jpg" border="0" alt="" id="BLOGGER_PHOTO_ID_5475010113990776738" style="cursor: pointer; width: 200px; height: 150px; " /></a><div><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgnefX33mAmN-fFu5j-kqYTNBP6ryx1c4pdWcuQrruOUfc79onhkRhDh7W9rGvMRFy1dQMZj1cTD1sK1M7M1AYgBv_1dLyrG3kziesiUnvEGL09dhfnKY6B4CSnR90q10S3RujdJ3kKByI/s1600/3.10+snd+mt+07.jpg"></a>The following week Faith had a CF Team appointment. Everything seems stable for now. She got to try the FEV machine (Forced Expiratory Volume to check her lung capacity, essentially) again, we worked out some information for her vest and have a few things to be followed up on, but her lungs sound clear and she's at 70% for height and 67% for weight, which is phenominal! We are fully aware that this can change dramatically with a minor illness, but we will happily take these numbers when we can! Our goal is always above 50%, GO FAITH!<br /><div><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgnefX33mAmN-fFu5j-kqYTNBP6ryx1c4pdWcuQrruOUfc79onhkRhDh7W9rGvMRFy1dQMZj1cTD1sK1M7M1AYgBv_1dLyrG3kziesiUnvEGL09dhfnKY6B4CSnR90q10S3RujdJ3kKByI/s1600/3.10+snd+mt+07.jpg"></a><br /><br /></div></div>Faithhttp://www.blogger.com/profile/05879331598882462876noreply@blogger.com0tag:blogger.com,1999:blog-1530181162376293362.post-41614129706906717782010-02-28T16:31:00.000-08:002010-05-24T16:59:53.942-07:00February 2010<div><span class="Apple-tab-span" style="white-space:pre"> </span>The month of February started off with Brooke in for a Dr. visit with an ear infection and Stephanie got to go to Pismo Beach to visit her great friend Catheline for a girl weekend.<div><span class="Apple-tab-span" style="white-space:pre"> </span>Faith was due this month for her annual blood work. Grandpa Marlin joined us. Faith was nervous and scared as usual. She cried, but always seems to understand it's necessary and doesn't fight. She did a great job. Results later came back with very good information and she seems to be absorbing all of her vitamins well.</div><div><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh8RLbd0mGtwA6O6VN6G96DdUJ6pHgcI9UNOY28bw0PSy378yAC09hFTM2_RtWB30ZS1-FDJNEgaIdOV2n0nf1BqFyhQWRu6RfkEEpfQ31JqyU7o8MKc-h6nJJMp9Qwa5GhqhKgEou4jYI/s1600/2010+February+083.JPG"><img src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh8RLbd0mGtwA6O6VN6G96DdUJ6pHgcI9UNOY28bw0PSy378yAC09hFTM2_RtWB30ZS1-FDJNEgaIdOV2n0nf1BqFyhQWRu6RfkEEpfQ31JqyU7o8MKc-h6nJJMp9Qwa5GhqhKgEou4jYI/s200/2010+February+083.JPG" border="0" alt="" id="BLOGGER_PHOTO_ID_5474987476813521618" style="cursor: pointer; width: 150px; height: 200px; " /></a> <a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjTbdFtXTGRM151dPk1-yUTASVQ580kpFfjSkU3YXUXqZ-Rl1ZdI9_2RKSneLFRr_GK6ELUpeJgKYwyYlKfRla7HqyboU03FK8ql2CHzw60r66s4yy8yRYVHto64Sfa7ooyFfhQ4T98OA8/s1600/2010+February+076.JPG"><img src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjTbdFtXTGRM151dPk1-yUTASVQ580kpFfjSkU3YXUXqZ-Rl1ZdI9_2RKSneLFRr_GK6ELUpeJgKYwyYlKfRla7HqyboU03FK8ql2CHzw60r66s4yy8yRYVHto64Sfa7ooyFfhQ4T98OA8/s200/2010+February+076.JPG" border="0" alt="" id="BLOGGER_PHOTO_ID_5474987468928964882" style="cursor: pointer; width: 200px; height: 150px; " /></a></div><div>Brooke tried Faith's dance class and after two times she no longer had interest. Not sure why, but I got a couple of cute photos as proof she tried! This month was 'puppy' Falon's 1st birthday, too, so we celebrated with a little doggie ice cream.</div> <a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh990GTNBi4T9_R4I9NgjxqVG0aHDZ4slx2y-LVHxwOmbdn3BiCywqTgszoqx43b2I2LQrAQa7kSSrj3WZ58NrAQnXh5f2Z4YQ8c6aPj_KxYBp-MO7nmQ-7IjbC9_n0aI5Hg9xTMqLH3UQ/s1600/2010+February+094.JPG"><img src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh990GTNBi4T9_R4I9NgjxqVG0aHDZ4slx2y-LVHxwOmbdn3BiCywqTgszoqx43b2I2LQrAQa7kSSrj3WZ58NrAQnXh5f2Z4YQ8c6aPj_KxYBp-MO7nmQ-7IjbC9_n0aI5Hg9xTMqLH3UQ/s200/2010+February+094.JPG" border="0" alt="" id="BLOGGER_PHOTO_ID_5474987487901834562" style="cursor: pointer; width: 150px; height: 200px; " /></a></div><div><span class="Apple-tab-span" style="white-space:pre"> </span>We have been growing about 70 plants from little seedlings and went ahead and planted them prior to our upcoming trip. The girls LOVE planting and checking on the garden.</div><div><span class="Apple-tab-span" style="white-space:pre"> </span>Steph's parents shared the duties of keeping the kids while we went on an adult's only trip to Vegas for Morgan's 30th birthday! The first night we stayed in an amazing suite at Vdara, one of the newest hotels on the strip. Then, the rest of the friends and family joined us at a timeshare down the road. We had a great time and in all saw 2 shows (Morgan was even pulled up on stage and we laughed SO hard), walked a bunch, danced a bunch, gambled some, then finished the weekend with Nascar......the rest is as they say, "What happens in Vegas, stays in Vegas!"</div><div><a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEixnB5NqL3ARqm9fOIw4LjpY5KE7CXTijgya_bgXToy65DwWHEhuXtwdWpjPrf1_XYaEXgunDHWAA-lINSBgToJtFiWGLh63ltYPY2FnQWt2mnzf1R7OYMeudkdbk3K8AjwZ6PDE4qe3SM/s1600/vegas+02.jpg"><img style="cursor:pointer; cursor:hand;width: 150px; height: 200px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEixnB5NqL3ARqm9fOIw4LjpY5KE7CXTijgya_bgXToy65DwWHEhuXtwdWpjPrf1_XYaEXgunDHWAA-lINSBgToJtFiWGLh63ltYPY2FnQWt2mnzf1R7OYMeudkdbk3K8AjwZ6PDE4qe3SM/s200/vegas+02.jpg" border="0" alt="" id="BLOGGER_PHOTO_ID_5474987495780616146" /></a> <a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgwAJARvgvTwrl13TNaprfSHHVPxKhaFBIHbqiKH-4bxNQeJI0qJ6cfLXO2EiTEf6FhDwwqLTHwd7GvjJjVxpPQzTZXnPiC0N8VBQ80DPFIXcYqR3p__Is-EOU3QcHKGC2nu5U-fTUgETk/s1600/100_1879.JPG"><img style="cursor:pointer; cursor:hand;width: 200px; height: 150px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgwAJARvgvTwrl13TNaprfSHHVPxKhaFBIHbqiKH-4bxNQeJI0qJ6cfLXO2EiTEf6FhDwwqLTHwd7GvjJjVxpPQzTZXnPiC0N8VBQ80DPFIXcYqR3p__Is-EOU3QcHKGC2nu5U-fTUgETk/s200/100_1879.JPG" border="0" alt="" id="BLOGGER_PHOTO_ID_5474987489830043586" /></a> </div><div><a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh990GTNBi4T9_R4I9NgjxqVG0aHDZ4slx2y-LVHxwOmbdn3BiCywqTgszoqx43b2I2LQrAQa7kSSrj3WZ58NrAQnXh5f2Z4YQ8c6aPj_KxYBp-MO7nmQ-7IjbC9_n0aI5Hg9xTMqLH3UQ/s1600/2010+February+094.JPG"></a><div><span class="Apple-tab-span" style="white-space:pre"> </span>When we got home from Vegas, all of our little plants had croaked. There was a huge storm backat home and none of them really made it :( so we'll have to try again...</div></div>Faithhttp://www.blogger.com/profile/05879331598882462876noreply@blogger.com0tag:blogger.com,1999:blog-1530181162376293362.post-65901496636900814842010-02-07T17:00:00.000-08:002010-05-24T18:22:20.649-07:00Happy FIFTH Birthday, Faith!<span class="Apple-tab-span" style="white-space:pre"> </span>March 4 was Faith's 5th birthday. Five is a big deal for Faith and our family. If Faith was born 50 years ago, we would've been told she wouldn't live to see age 5. I cannot imagine that and try to only seldom even allow myself to be swallowed by the thoughts & devastation that cystic fibrosis is.<div><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEizXJuMlmd1xrM_GRHGo-wtDjoHkUKkSUzkKPdawzjRIE8FCDhhW86RepxTgw6hHakqbAj1bglziBa4EAj8Zy9441ye9xqu8ay2H-Nw3LDkBEId2Ke-Lu9i5c4xD7SzOcPnubvNxHCbsi8/s1600/100_1664.JPG"><img src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEizXJuMlmd1xrM_GRHGo-wtDjoHkUKkSUzkKPdawzjRIE8FCDhhW86RepxTgw6hHakqbAj1bglziBa4EAj8Zy9441ye9xqu8ay2H-Nw3LDkBEId2Ke-Lu9i5c4xD7SzOcPnubvNxHCbsi8/s200/100_1664.JPG" border="0" alt="" id="BLOGGER_PHOTO_ID_5475002848912062098" style="cursor: pointer; width: 150px; height: 200px; " /></a> <a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjJokZNiROcqKpAdQo48d987nXH0UU_i3WyGQLda4XTbXMkJacfs3BG0Jy6r55-jlTGFXMD56txesk1pDPUu2JeoJ0SSmwGEMHqG2xRGrcC5HyyVa3YHRPmtFtWKZ-OPxyRhx1r04DafW4/s1600/2010+Feb+girls+024.JPG"><img src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjJokZNiROcqKpAdQo48d987nXH0UU_i3WyGQLda4XTbXMkJacfs3BG0Jy6r55-jlTGFXMD56txesk1pDPUu2JeoJ0SSmwGEMHqG2xRGrcC5HyyVa3YHRPmtFtWKZ-OPxyRhx1r04DafW4/s200/2010+Feb+girls+024.JPG" border="0" alt="" id="BLOGGER_PHOTO_ID_5475002841293583650" style="cursor: pointer; width: 138px; height: 200px; " /></a> <a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg9VJ8AQ3fLVNWKbXDi60opGGYUtl_VmjUnwjeL-FCjXKiGsV_Yw_bJWOsxyLnYU0MeH4RzqxTouvXamprbpSH-IpmTwdrMYcGcDWAsYdphDV72o-Yt-X46fLY3dtSBG_o2KdnkvHFTR9Y/s1600/faith's+5th+02.jpg"><img src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg9VJ8AQ3fLVNWKbXDi60opGGYUtl_VmjUnwjeL-FCjXKiGsV_Yw_bJWOsxyLnYU0MeH4RzqxTouvXamprbpSH-IpmTwdrMYcGcDWAsYdphDV72o-Yt-X46fLY3dtSBG_o2KdnkvHFTR9Y/s200/faith's+5th+02.jpg" border="0" alt="" id="BLOGGER_PHOTO_ID_5475001404430905698" style="cursor: pointer; width: 200px; height: 150px; " /></a><br /><span class="Apple-tab-span" style="white-space:pre"> </span>Faith had a Garden Party. I gave her a list of ideas weeks ago and her eyes lit up at the garden idea. She had about 10 girls over to decorate little pots, color butterflies then pin them on the flower while blindfolded, played a game outside and planted seeds into their pots of dirt to take home. The party was complete with ladybug strawberries, flower sandwiches and a 65 roses garden with info to sign up for the CFF Greatstrides walk. Everyone had a great time! After the party Faith said, "Happy Birthday to myself!" I asked her what her favorite part of the day was and this was her reply:<br /><div>"Everything! I have 4 favorites: 1. The dirt cups (to eat), 2. Qwynci's messy face (from the purple cupcake frosting), 3. The rainbow facepaint (thanks Tiffany for helping!), 4. All my friends helping me open my presents.....and I have one more, playing with all my presents after the party (naturally!)." I'm not sure about posting pictures of all the kids without parent consent, so here's what it looked like before the chaos, haha!</div><div><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi_5dCl-igqrGUq4zrXv04FK1EOyWc5SglrqdUu2DZNuZukfJhOdurbntFkd_kPmyZbOQCjfSNQEmXLWViShQ64tLEd7mDGQZH3w3Tr2LIBTbdhKdBIIQkf2gSuY7nPXMGXiMc9tvJ3QeY/s1600/100_2039.JPG"><img src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi_5dCl-igqrGUq4zrXv04FK1EOyWc5SglrqdUu2DZNuZukfJhOdurbntFkd_kPmyZbOQCjfSNQEmXLWViShQ64tLEd7mDGQZH3w3Tr2LIBTbdhKdBIIQkf2gSuY7nPXMGXiMc9tvJ3QeY/s200/100_2039.JPG" border="0" alt="" id="BLOGGER_PHOTO_ID_5475001415814789938" style="cursor: pointer; width: 150px; height: 200px; " /></a> <a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhfVSbhq91NaxupBs7CwcrqaF4oTHpuelbQLVREF7qalRCls0D8ep8JeYTzc0H0lcC6qkaXndGfb5llX_dKh2Y1_OyZ5U4sMHnzh5Npz5vaRlvaI54LaG-mE02hOUTvCWA84CIUR29OW2U/s1600/100_5931.JPG"><img src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhfVSbhq91NaxupBs7CwcrqaF4oTHpuelbQLVREF7qalRCls0D8ep8JeYTzc0H0lcC6qkaXndGfb5llX_dKh2Y1_OyZ5U4sMHnzh5Npz5vaRlvaI54LaG-mE02hOUTvCWA84CIUR29OW2U/s200/100_5931.JPG" border="0" alt="" id="BLOGGER_PHOTO_ID_5475001428411592722" style="cursor: pointer; width: 200px; height: 150px; " /></a> <a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEidmRoYqo5OrSyuf6xkREni3npuHsITjZxUyWQ8BEIIxgk7tOwpirIq1ZnRutTyPvdjoSmmacyvCFBdm7xBXR1ThNc7TeXnLISAJsfjXCUCLQoIQm1UHChWUKzX8GnXbcnux5daDZbuqO8/s1600/100_1991.JPG"><img src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEidmRoYqo5OrSyuf6xkREni3npuHsITjZxUyWQ8BEIIxgk7tOwpirIq1ZnRutTyPvdjoSmmacyvCFBdm7xBXR1ThNc7TeXnLISAJsfjXCUCLQoIQm1UHChWUKzX8GnXbcnux5daDZbuqO8/s200/100_1991.JPG" border="0" alt="" id="BLOGGER_PHOTO_ID_5475001424267474914" style="cursor: pointer; width: 150px; height: 200px; " /></a> <a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjhAchU-EBD6hrT89tUZGzoIzGTwq0ZMthzf2iDY0mx1fft5xUA6K_93hBS4TfI08Koa-_qHTUbk4caZnTpKD6kQSQZZctkaSFrD5G2ud-e-6M0wXDyjFzYZhaeOEVJYIUI4ghrLNX1g9A/s1600/100_1986.JPG"><img src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjhAchU-EBD6hrT89tUZGzoIzGTwq0ZMthzf2iDY0mx1fft5xUA6K_93hBS4TfI08Koa-_qHTUbk4caZnTpKD6kQSQZZctkaSFrD5G2ud-e-6M0wXDyjFzYZhaeOEVJYIUI4ghrLNX1g9A/s200/100_1986.JPG" border="0" alt="" id="BLOGGER_PHOTO_ID_5475001405562439634" style="cursor: pointer; width: 150px; height: 200px; " /></a> Also after the party, Brookie was caught trying to give Falon lip gloss! </div><div><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEge25f7uOf7TZIL03cZuX-vyHh0GpRrje1EQM3APUx74YPBAiBO3I5HwiF3qJxl-NvpCcwbUdwznwTZCekrb-orfB80sjamEDvPWqfoe__RlKvgiQTL5gwsbx5uQ0RbZmBKUMAejcfQIXI/s1600/100_5970.JPG"><img src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEge25f7uOf7TZIL03cZuX-vyHh0GpRrje1EQM3APUx74YPBAiBO3I5HwiF3qJxl-NvpCcwbUdwznwTZCekrb-orfB80sjamEDvPWqfoe__RlKvgiQTL5gwsbx5uQ0RbZmBKUMAejcfQIXI/s200/100_5970.JPG" border="0" alt="" id="BLOGGER_PHOTO_ID_5475003294682624434" style="cursor: pointer; width: 200px; height: 150px; " /></a></div></div>Faithhttp://www.blogger.com/profile/05879331598882462876noreply@blogger.com0tag:blogger.com,1999:blog-1530181162376293362.post-8640226274989999772010-01-31T19:15:00.000-08:002010-05-24T18:22:57.409-07:00Brookie's 4rd Bday<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhUKKeiVgvjnKadgGm7hFdfgEolCkLCe0zRfhmK1fuvX-MntJKNFx962igEcC3fiDO3gkAvnq4elEsWhIWvitqrnWqVcUcUsYADN3hfAo0P2pqkKKd8z-yBZST6pL4nC83TTvO06ORKU7k/s1600/2010+january+Brooke%27s+%233+005.JPG"><img src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhUKKeiVgvjnKadgGm7hFdfgEolCkLCe0zRfhmK1fuvX-MntJKNFx962igEcC3fiDO3gkAvnq4elEsWhIWvitqrnWqVcUcUsYADN3hfAo0P2pqkKKd8z-yBZST6pL4nC83TTvO06ORKU7k/s200/2010+january+Brooke%27s+%233+005.JPG" border="0" alt="" id="BLOGGER_PHOTO_ID_5475006142281032210" style="cursor: pointer; width: 143px; height: 200px; " /></a> <a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiGgpv04_eBT7SAtMBKiTLorPNkHP7TTkMCADjDy8g5Kecv_9JjnFy6NAH-mCv6zjAj-boSvXlzvZlMNC4qcCoKXQkzge3WEiBoZRtRfk0tbJDErItzxACT-UQVTPwmzFzTT2yiKtakNYA/s1600/2010+january+Brooke%27s+%233+094.JPG"><img style="cursor:pointer; cursor:hand;width: 150px; height: 200px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiGgpv04_eBT7SAtMBKiTLorPNkHP7TTkMCADjDy8g5Kecv_9JjnFy6NAH-mCv6zjAj-boSvXlzvZlMNC4qcCoKXQkzge3WEiBoZRtRfk0tbJDErItzxACT-UQVTPwmzFzTT2yiKtakNYA/s200/2010+january+Brooke%27s+%233+094.JPG" border="0" alt="" id="BLOGGER_PHOTO_ID_5475006161562021682" /></a> <a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgfsRGVno8HXXXnOWQ80V4Dp4cPSeRG5QYXq99rKBEJg16AsDcUGts0ee81GxGdy-o0VRfu4lMRCzmNdwH6Nde1f6kl87ZnU_2vPVckfNlvcVmJp30JzZ1BIb1CuiUt3KpEdeWU6p4HMqU/s1600/2010+january+Brooke%27s+%233+079.JPG"><img src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgfsRGVno8HXXXnOWQ80V4Dp4cPSeRG5QYXq99rKBEJg16AsDcUGts0ee81GxGdy-o0VRfu4lMRCzmNdwH6Nde1f6kl87ZnU_2vPVckfNlvcVmJp30JzZ1BIb1CuiUt3KpEdeWU6p4HMqU/s200/2010+january+Brooke%27s+%233+079.JPG" border="0" alt="" id="BLOGGER_PHOTO_ID_5475006995315061506" style="cursor: pointer; width: 200px; height: 150px; " /></a><br />We celebrated Brookie turning 3 by giving her an official party, finally. It was a great bash at the backroom of Strikes Bowling.<div><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEijhXDP59P056q28Pmg6ZTG_rKs4ELCsHUwlNxdupYvsZJ11aTAMxderiy70KC9m1sNAac_cAUTh_Y934KGwAmUkYGihTXxFWYaK98ai1SvdlflkOj4ngbkHTqoRmWbXSEAKsfXFnbRQL8/s1600/scan0083.jpg"><img src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEijhXDP59P056q28Pmg6ZTG_rKs4ELCsHUwlNxdupYvsZJ11aTAMxderiy70KC9m1sNAac_cAUTh_Y934KGwAmUkYGihTXxFWYaK98ai1SvdlflkOj4ngbkHTqoRmWbXSEAKsfXFnbRQL8/s200/scan0083.jpg" border="0" alt="" id="BLOGGER_PHOTO_ID_5475007023775433986" style="cursor: pointer; width: 200px; height: 159px; " /></a> <a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhDtPcs6mnjttJtrkNyQgBm_s0SuxZkMdZ4bI7LTji4SCZVeDJnRfAnXNxd-j4Ten1mRSc3iJjg6SI_MWDSpMxYfm4TBXlm4jE6QNjbPEL8teitoHDupNwOLspnzOi0vjyKqmVf19Iwr4I/s1600/2010+january+Brooke%27s+%233+126.JPG"><img src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhDtPcs6mnjttJtrkNyQgBm_s0SuxZkMdZ4bI7LTji4SCZVeDJnRfAnXNxd-j4Ten1mRSc3iJjg6SI_MWDSpMxYfm4TBXlm4jE6QNjbPEL8teitoHDupNwOLspnzOi0vjyKqmVf19Iwr4I/s200/2010+january+Brooke%27s+%233+126.JPG" border="0" alt="" id="BLOGGER_PHOTO_ID_5475007014135972434" style="cursor: pointer; width: 200px; height: 150px; " /></a><br /><div>Faith is loving dance class and Brooke is thinking about joining in soon. Faith's appointment went well this month...she gained about a pound since last month! She's doing so well that her pulmonologist gave us the option to skip her CF Team appointment since we'd pretty much done everything on their task list over the past few appointments. She also discussed with us the option of quitting TOBI semi-permanently for now since she's had clear cultures for about 18 months. She's only ever cultured a 1+ Pseudomonas twice in her life, approximately 2 years apart, so it seems to be a rare occurence. What we hope is that she doesn't culture it again for many months or even years. If she does so within the next few months, it is possible that she has it so deep in her lungs that it takes a few months of a break from TOBI inhaled antibiotics to grow up to a point at which the throat culture would catch it. So, it's a wait and see game, but for now....NO TOBI, which elates us :)</div><div> <a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh8zZKN0o_uSzHVUJxhJNE3Fsm6CuFqLnPz4Af83GzslTN2X8q_7yRLAuTK2CjWez2Ua-a-uom-mZJc5CErZ0EsFNFc1UuiXGBst1iDEhbWnSJU1MzdH5wS85hCdY7I7r3gSKhrdyLF-hQ/s1600/100_1378.JPG"><img src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh8zZKN0o_uSzHVUJxhJNE3Fsm6CuFqLnPz4Af83GzslTN2X8q_7yRLAuTK2CjWez2Ua-a-uom-mZJc5CErZ0EsFNFc1UuiXGBst1iDEhbWnSJU1MzdH5wS85hCdY7I7r3gSKhrdyLF-hQ/s200/100_1378.JPG" border="0" alt="" id="BLOGGER_PHOTO_ID_5475007007878832690" style="cursor: pointer; width: 200px; height: 150px; " /></a> <a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjmeHZzTXpPMD_dTxFF8MTdfF6tC6vQrInY5qc0mnLPioTF9Ll2nCWQ0osKL9U0tYyDupQ8EzFAbweX9xroGhPWKHd10quLyy-I0pB5ab5AIaDX_Ql8eE8twUTHYu8TaQpebYEXInjwmzI/s1600/2010+january+Brooke%27s+%233+009.JPG"><img src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjmeHZzTXpPMD_dTxFF8MTdfF6tC6vQrInY5qc0mnLPioTF9Ll2nCWQ0osKL9U0tYyDupQ8EzFAbweX9xroGhPWKHd10quLyy-I0pB5ab5AIaDX_Ql8eE8twUTHYu8TaQpebYEXInjwmzI/s200/2010+january+Brooke%27s+%233+009.JPG" border="0" alt="" id="BLOGGER_PHOTO_ID_5475006163672184530" style="cursor: pointer; width: 200px; height: 150px; " /></a></div><div><div><div>Mid January we had this conversation:</div><div>Faith: "Mommy, if you have an eye in the back of your head, how does it see?"</div><div>Steph: " It's super special"</div><div>Faith: "Does it still work when you turn your head like this?"</div><div>Steph: "Yup, it's magic."</div><div>Faith: "Will I ever grow and eye in the back of my head?"<br /></div><div>Steph: "Yes, you get it when you have kids and become a mommy"</div><div>Faith: "Oh! And how can it see through your hair?"</div><div><br /></div><div>Such inquisitive thoughts she has for a little one!</div></div></div></div>Faithhttp://www.blogger.com/profile/05879331598882462876noreply@blogger.com0tag:blogger.com,1999:blog-1530181162376293362.post-79293464803437975772010-01-03T18:06:00.000-08:002010-03-09T19:13:36.377-08:00<a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhNoV5OdyuMMRbSP2iOlhlQJ45Fwmmv2R5jFsUMCwXuoWahMNkZKQi71XoOTHoQqURK4q3K1xPw47MFr7H3JuiCke1MRjMg6khBIEWXOMBA4Lga9XbtYY_Cw-OnJ0LV7NBKjWvSChLYu3c/s1600-h/100_1294.JPG"><img style="float:left; margin:0 10px 10px 0;cursor:pointer; cursor:hand;width: 200px; height: 150px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhNoV5OdyuMMRbSP2iOlhlQJ45Fwmmv2R5jFsUMCwXuoWahMNkZKQi71XoOTHoQqURK4q3K1xPw47MFr7H3JuiCke1MRjMg6khBIEWXOMBA4Lga9XbtYY_Cw-OnJ0LV7NBKjWvSChLYu3c/s200/100_1294.JPG" border="0" alt="" id="BLOGGER_PHOTO_ID_5446837922808684898" /></a><br /><a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjRhA3YNecv_Y45fbDGtlyG5BqHnaSxWInztS1sownOTzgmxoNP5uwJnfC_SaJt8DWlB0a3vbXcJc9AC90Ph-qlcDR7qEx4VNIGpqsQiYFhgg-i3O-KK1Nf7XXM9uSz1Pp69pBKPn9GOvw/s1600-h/100_1277.JPG"><img style="float:left; margin:0 10px 10px 0;cursor:pointer; cursor:hand;width: 200px; height: 150px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjRhA3YNecv_Y45fbDGtlyG5BqHnaSxWInztS1sownOTzgmxoNP5uwJnfC_SaJt8DWlB0a3vbXcJc9AC90Ph-qlcDR7qEx4VNIGpqsQiYFhgg-i3O-KK1Nf7XXM9uSz1Pp69pBKPn9GOvw/s200/100_1277.JPG" border="0" alt="" id="BLOGGER_PHOTO_ID_5446837713470175618" /></a><br /><a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg3cbRxZfWbLYuPawOh0dMgJzlhNn3QKF1KEZQ6KPzI4h3UAkrB8YjT2sCv0ikVSM7Qql_QxStDEPQ6FB4IG5Qaao8uyYZsWaGucEllZwfc1R6ELhBuoDbXZ8vZ51Kt3q8nBUPvP-PXewg/s1600-h/Christmas%25202009%2520021%5B1%5D.jpg"><img style="float:left; margin:0 10px 10px 0;cursor:pointer; cursor:hand;width: 200px; height: 150px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg3cbRxZfWbLYuPawOh0dMgJzlhNn3QKF1KEZQ6KPzI4h3UAkrB8YjT2sCv0ikVSM7Qql_QxStDEPQ6FB4IG5Qaao8uyYZsWaGucEllZwfc1R6ELhBuoDbXZ8vZ51Kt3q8nBUPvP-PXewg/s200/Christmas%25202009%2520021%5B1%5D.jpg" border="0" alt="" id="BLOGGER_PHOTO_ID_5446837697775086914" /></a><br /><a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgjsyqewx_BIy4sIub4xuGpHjyPK8eHYCOv0LsdI6JFuN2pa4V3pl7vyr-eXdsRoblq5YxMulEQZs-Dg980hqqaDReeBiXMaS6x5R3bCivU9l7M8ZaLse6Kfd0DT2qoY7AOQPps1kh5qpU/s1600-h/scan0020+-+Copy.jpg"><img style="float:left; margin:0 10px 10px 0;cursor:pointer; cursor:hand;width: 140px; height: 200px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgjsyqewx_BIy4sIub4xuGpHjyPK8eHYCOv0LsdI6JFuN2pa4V3pl7vyr-eXdsRoblq5YxMulEQZs-Dg980hqqaDReeBiXMaS6x5R3bCivU9l7M8ZaLse6Kfd0DT2qoY7AOQPps1kh5qpU/s200/scan0020+-+Copy.jpg" border="0" alt="" id="BLOGGER_PHOTO_ID_5446837684674101458" /></a><br /><a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh7nOYf5pyV6ejyDSswCxB64z8kqNPAv05x2CjrzNHrwwvvosIW4KYxoJJWHmYHmwBk1q9oLfGVbBDrEq044DKHo5LBh41bCQR2A5GDhO0FkndMMkbwdBklBTvWybwF_2o6pM69G_rcKZY/s1600-h/2009+Dec.+Parent%27s+20th+Anniversary+091.JPG"><img style="float:left; margin:0 10px 10px 0;cursor:pointer; cursor:hand;width: 200px; height: 150px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh7nOYf5pyV6ejyDSswCxB64z8kqNPAv05x2CjrzNHrwwvvosIW4KYxoJJWHmYHmwBk1q9oLfGVbBDrEq044DKHo5LBh41bCQR2A5GDhO0FkndMMkbwdBklBTvWybwF_2o6pM69G_rcKZY/s200/2009+Dec.+Parent%27s+20th+Anniversary+091.JPG" border="0" alt="" id="BLOGGER_PHOTO_ID_5446837673215690690" /></a><br /><a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhMglIJtmR_4FPtEV0RQK1OiDuLIC4vbKnVcsQMJy-D99WzeR24pq8nn4iFMMVHv5wDrsp0hRFWTZ3m1LQWoOpclw6RIhkmekoQqAcvB09mq2ncS8RZ0tWnaU1pJOQffIUHsR4_87ZRUBI/s1600-h/100_1124.JPG"><img style="float:left; margin:0 10px 10px 0;cursor:pointer; cursor:hand;width: 200px; height: 150px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhMglIJtmR_4FPtEV0RQK1OiDuLIC4vbKnVcsQMJy-D99WzeR24pq8nn4iFMMVHv5wDrsp0hRFWTZ3m1LQWoOpclw6RIhkmekoQqAcvB09mq2ncS8RZ0tWnaU1pJOQffIUHsR4_87ZRUBI/s200/100_1124.JPG" border="0" alt="" id="BLOGGER_PHOTO_ID_5446821481149143218" /></a><br /><div><br /></div><div><br /></div><div><br /></div><div><br /></div><div><br /></div><div><br /></div><div><br /></div><div><br /></div><div><span class="Apple-tab-span" style="white-space:pre"> </span>In November, Faith suddenly began crying because her ear hurt. She's never had an ear infection and really, rarely has a fever when she's sick. Over the next week or so she was on and off with a congested nose which led itself to a wet cough by Thanksgiving Day (which we spent at my dad's house) and Brooke had her own cough going as well. Once again, she had no appetite and was lethargic. After a visit with the pulmonologist and a throat culture, Faith ended up on antibiotics which slowly cleared her cough up and luckily, the culture came out clear. Morgan and I were able to have a weekend getaway to Half Moon Bay for my birthday at the end of the month :)</div><div><span class="Apple-tab-span" style="white-space:pre"> </span>December brought my dad and stepmom's 20th Anniversary....the four of us kids and spouses took them out for a night on the town in San Francisco, complete with a limo, dinner, video montage and a Cirque de Soleil show. We all had a wonderful time celebrating them! As everyone knows, the month is also filled with a miriad of Christmas parties and dinners as well and we were able to enjoy them all. Neither of the kids got sick, but Faith's appointment with the pulmonologist did reveal that her weight gain remains at a standstill and she was to come back in one month.</div><div><span class="Apple-tab-span" style="white-space:pre"> </span>Faith's requests from Santa once again had us on our toes for the big red guy. She was asking for a remote control ladybug, a flying Barbie (which we convinced her that perhaps a Tinkerbell would be more suitable to fly) and a pink quad. It's a good thing she got her letter in on time because Santa came through and the girls both had a great Christmas. We were supposed to start TOBI, her extra hour of breathing treatment right around Christmas Eve, but we pushed it off until the New Year. Brooke's request was candy and sure enough, that was her favorite item Christmas morning! The four of us went up to Tahoe to play in the snow for a couple of days and Brooke turned 3 on the 30th. We rang in the new year with Morgan's brother's family nice and causally, playing Rockband!</div><div><br /></div><div><br /></div><div><br /></div>Faithhttp://www.blogger.com/profile/05879331598882462876noreply@blogger.com0tag:blogger.com,1999:blog-1530181162376293362.post-58827031382420442272009-11-10T17:38:00.000-08:002010-03-09T18:05:24.487-08:00<a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhb7vr6zTNIxyksy2u2BQNE8ztVd22w7zYrOL8cdZWD2jNy6UP1gmsRHgCAJ4QtDmwVUPZrNk2lUYBjNB7mW-FDRdQ8__sZQp8U58zyB4pj1sP3c2XGyOcks2jCj-tB6nzk3V56mJE-cF8/s1600-h/2009+November+008.JPG"><img style="cursor:pointer; cursor:hand;width: 150px; height: 200px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhb7vr6zTNIxyksy2u2BQNE8ztVd22w7zYrOL8cdZWD2jNy6UP1gmsRHgCAJ4QtDmwVUPZrNk2lUYBjNB7mW-FDRdQ8__sZQp8U58zyB4pj1sP3c2XGyOcks2jCj-tB6nzk3V56mJE-cF8/s200/2009+November+008.JPG" border="0" alt="" id="BLOGGER_PHOTO_ID_5446814823647511410" /><span><span></span></span></a><br /><a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgUXvhI95-ExB-RBYmezykNKnbQaZu1vqwR0SUEku5mZJ6gDziv7d57yx7QlNqfKATOpt_kSiNyWSCEIu5XqM0H_7RTtsmjFZfG82VlPs3qQks7z5O16ox1USVWA3i1X2lwn6rXQwVZOvc/s1600-h/photo+3%5B2%5D.jpg"><img style="cursor:pointer; cursor:hand;width: 150px; height: 200px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgUXvhI95-ExB-RBYmezykNKnbQaZu1vqwR0SUEku5mZJ6gDziv7d57yx7QlNqfKATOpt_kSiNyWSCEIu5XqM0H_7RTtsmjFZfG82VlPs3qQks7z5O16ox1USVWA3i1X2lwn6rXQwVZOvc/s200/photo+3%5B2%5D.jpg" border="0" alt="" id="BLOGGER_PHOTO_ID_5446814811394841746" /></a><br /><a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgTM6h0bT4mV55KneueNUbsnfcI-K04xnD226osndtGcqOa6a-AT41Nll032zV8phIkx5wMHT94ixKN-toEEQKmfkCDHqhGDsmxW6RIXEg8O3UpGgC9K6bhojF_I7g2tyBFlm5qPIBSRMY/s1600-h/P1030133.JPG"><img style="cursor:pointer; cursor:hand;width: 200px; height: 150px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgTM6h0bT4mV55KneueNUbsnfcI-K04xnD226osndtGcqOa6a-AT41Nll032zV8phIkx5wMHT94ixKN-toEEQKmfkCDHqhGDsmxW6RIXEg8O3UpGgC9K6bhojF_I7g2tyBFlm5qPIBSRMY/s200/P1030133.JPG" border="0" alt="" id="BLOGGER_PHOTO_ID_5446814797380439570" /></a><br /><div><span class="Apple-tab-span" style="white-space:pre"> </span>The Miralax seemed to help within a few days because Faith grew an appetite. Despite having the flu vaccine, we're pretty sure that Brooke and I had the H1N1 flu (those vaccines weren't yet available to us) and Faith was put on Tamiflu along with us as a precaution. We stayed away from she and Morgan as much as possible and they escaped with no illness. As sick as the two of us were, I can't imagine her having that flu, it was ugly. She did end up with a few stuffy noses and ended up staying home from school for what seemed to be almost half her scheduled days due to either her illness or other kids' sick at school. We're grateful for her teacher who gives us a heads up when there's something going around.</div><div><span class="Apple-tab-span" style="white-space:pre"> </span>As you can see, the homemade unicorn and Rainbow Brite costumes worked out just fine and we had a great Halloween party! </div>Faithhttp://www.blogger.com/profile/05879331598882462876noreply@blogger.com0tag:blogger.com,1999:blog-1530181162376293362.post-54146513406893457092009-10-08T17:14:00.000-07:002009-10-09T08:32:02.332-07:00Oh, Poo! Sept/Oct 2009<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjO7XMxfp4Qffwztci-EARKA9zD2ay3c4u2MOdjtFK3OeWVIu1mtbSz9JOsOhf6jntXiCxs4REXLjAp7L_2xU1y9gw_YSO7H_c412RVIOdrpNDvsKYdtS2eLHTrFYpaffvcHfSir6FosUw/s1600-h/2009+1st+day+of+preschool+002.JPG"><img style="WIDTH: 150px; HEIGHT: 200px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5390623236088808194" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjO7XMxfp4Qffwztci-EARKA9zD2ay3c4u2MOdjtFK3OeWVIu1mtbSz9JOsOhf6jntXiCxs4REXLjAp7L_2xU1y9gw_YSO7H_c412RVIOdrpNDvsKYdtS2eLHTrFYpaffvcHfSir6FosUw/s200/2009+1st+day+of+preschool+002.JPG" /></a> <a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjBynUPa4ESBVLT3vUmMZ_IaNKxD3-cEetFLyjgOsB0tGMpDLX8P51oWL8-P45N8xfMdUAw3SsB1jJGCQ0Aq8eHeHrko7QbuMDjIV3-WPBBxaAGke6nwUGCWR4fc3aFDje1dbUENNHS2l4/s1600-h/2009+1st+day+of+preschool+004.JPG"><img style="WIDTH: 200px; HEIGHT: 150px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5390623228084923250" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjBynUPa4ESBVLT3vUmMZ_IaNKxD3-cEetFLyjgOsB0tGMpDLX8P51oWL8-P45N8xfMdUAw3SsB1jJGCQ0Aq8eHeHrko7QbuMDjIV3-WPBBxaAGke6nwUGCWR4fc3aFDje1dbUENNHS2l4/s200/2009+1st+day+of+preschool+004.JPG" /></a><br /><div> Faith has had an incredible lack of interest in food lately. She enjoys helping cook and often says something, "smells so gooood, " but once it's in front of her, she avoids it completely. We saw her pulmonologist this month and the concern for me was that the scale showed she hadn't gained weight at all in almost 6 months! Her arms are starting to thin out and she's grown a little in height. The Dr. did a throat culture and Faith was a little nervous at first, but a total pro while I counted to 3 during the throat tickles. Her lungs sounded clear, which is always a good thing to hear ;)<br /><br />So, our never-ending quest to put weight on little Faith continues...<br />October 1st she had a 3 hour appt with the CF Team. I voiced my biggest concern, which is her lack of hunger. We talked about what she's been eating, her height and weight were more meticulously measured...turns out that she actually had gained over a pound in the last three months, phew! The BMI is above 50%, which is always MY goal for her. The throat culture results came back clear, just the normal flora of bacteria. We will continue all of her regular treatments.<br /><br />The nurse felt her slightly distended belly and felt like we should get an x-ray of Faith's abdomen to see if something is going on in the intestines, which could cause her to not want to eat. So the next day after her dance class we headed for the xray. My mom met us to keep an eye on Brooke (thanks so much, mom!). I explained to Faith that nothing would hurt, but a lady would be taking a picture of her belly with a really big camera and mommy would get to stay with her the whole time so there was nothing to be scared about. I prefer to always tell her what is going to happen: shots, culture, treatments, etc so that she trusts me and knows what's going on. In this case I knew because she had a chest xray a couple years ago.<br /><br />She started to get a little nervous when putting her gown on, but I reiterated the truth. When it was her turn, she got up on the table and did a fantastic job staying very still with a smile on her face for 2 pictures. 4 days later the Dr. called with the results. She doesn't have a complete blockage, but there is a large 'build up' of stool in her right colon, still allowing regular amounts to pass by. She said older kids often complain of stomache ache, but very young children often just stop eating. A complete blockage would mean a hospital stay, but since this is not, we first begin treating her with a type of laxative that will help break down what's in there to get it out. This may or may not become an addition to her regular medications. For now, it's a matter of figuring out the balance Faith needs. She understand well what is happening and even retold the info to my mom mthe next day quite precisely! We are truly greatful that our CF Team caught this before it became a bigger problem and that the treatment is fairly 'simple.'<br /><br />So far this Fall, Faith is really loving school and dance class. We just decorated for Halloween and plan to have a party this year. Faith decided she wants to be a unicorn....not sure how that will turn out! Brooke will be rainbow brite. We'll be heading to the Pumpkin Patch tomorrow and plan to get these last few beautiful weeks out and about before the winter hibernation for us arrives. We were warned it's going to be a harsh winter for getting sick and we've already all gotten our flu shots!</div>Faithhttp://www.blogger.com/profile/05879331598882462876noreply@blogger.com0tag:blogger.com,1999:blog-1530181162376293362.post-61833581883377164072009-09-29T15:17:00.000-07:002009-10-09T09:03:18.811-07:00Summer 2009<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiTEorhXEYTPb1xoaHSsmJTS-TLaou7UewjTB8jC50XpRN9YWhDOo6rJkvSUOxX3UYJJd4efCqALMn6bgDpgzOP8M8i3-AjTMaFhDz4RdLffxRCwdN1_QEWTfjHiDJ98RkrBFRb1-hwBnk/s1600-h/BNB+%26+July+4+082.JPG"><img style="WIDTH: 200px; HEIGHT: 150px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5390629680201907730" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiTEorhXEYTPb1xoaHSsmJTS-TLaou7UewjTB8jC50XpRN9YWhDOo6rJkvSUOxX3UYJJd4efCqALMn6bgDpgzOP8M8i3-AjTMaFhDz4RdLffxRCwdN1_QEWTfjHiDJ98RkrBFRb1-hwBnk/s200/BNB+%26+July+4+082.JPG" /></a> <a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgFBV_t13y4nAH8lizbXU7L9lipm1ruE2FizC_dmRSEy_PRIFAoPoZ16RnZbTqGrrX-1RPFCvYLc7b6XmNp80-oRWjDXer9o5TZIl32lgc9ISD2n2YIsuXgqV8Y8P160yTC4U7bJO5vOTo/s1600-h/BNB+%26+July+4+041.JPG"><img style="WIDTH: 200px; HEIGHT: 150px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5390629694769572674" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgFBV_t13y4nAH8lizbXU7L9lipm1ruE2FizC_dmRSEy_PRIFAoPoZ16RnZbTqGrrX-1RPFCvYLc7b6XmNp80-oRWjDXer9o5TZIl32lgc9ISD2n2YIsuXgqV8Y8P160yTC4U7bJO5vOTo/s200/BNB+%26+July+4+041.JPG" /></a><br /><div><div><div><div><div></div><div><div><div><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiKLcZRhe-ER_E42ZkRSUzGMv6cll74vCN6rRcC3fLcPZczbpRy8x0KeDzH7s6_XgvYdNu8cbHg31_JH0pjJ83Gu9F-X3IwIo9BfQo-RiD-yvrTo-SHt0DVgYQbYktQL6MWjVf_jCoTbRo/s1600-h/7.4.09+036.JPG"><img style="WIDTH: 150px; HEIGHT: 200px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5387022539107953778" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiKLcZRhe-ER_E42ZkRSUzGMv6cll74vCN6rRcC3fLcPZczbpRy8x0KeDzH7s6_XgvYdNu8cbHg31_JH0pjJ83Gu9F-X3IwIo9BfQo-RiD-yvrTo-SHt0DVgYQbYktQL6MWjVf_jCoTbRo/s200/7.4.09+036.JPG" /></a> <a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgYO8zXaHaLpfylorhP7cdiYqBClOjAot6YWa-HWlL9pTBFv51vwsF5qi1TY4k23tOec1202RprOUfmogDRhxvNQ32D1CyOPAVasiIZ3544CoOKg716VnQQrMAa_boXy9H9PJWppb3jjWQ/s1600-h/7.4.09+019.JPG"><img style="WIDTH: 150px; HEIGHT: 200px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5387022532526737298" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgYO8zXaHaLpfylorhP7cdiYqBClOjAot6YWa-HWlL9pTBFv51vwsF5qi1TY4k23tOec1202RprOUfmogDRhxvNQ32D1CyOPAVasiIZ3544CoOKg716VnQQrMAa_boXy9H9PJWppb3jjWQ/s200/7.4.09+019.JPG" /></a> <a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhobZNtvOxp-Da6pCiDqmyYKYbO4u66HFUmwF8vnJV6fB9qPOr0ekaEx13HiOau_rprXTG8l243H3iG_cgxdqG2DAZM86JiSUdY4BlCHgqfe3B9DdUb75pom2xKxGEKKkeZ3y0klgQeSEM/s1600-h/7.4.09+040.JPG"><img style="WIDTH: 150px; HEIGHT: 200px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5387022547838856450" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhobZNtvOxp-Da6pCiDqmyYKYbO4u66HFUmwF8vnJV6fB9qPOr0ekaEx13HiOau_rprXTG8l243H3iG_cgxdqG2DAZM86JiSUdY4BlCHgqfe3B9DdUb75pom2xKxGEKKkeZ3y0klgQeSEM/s200/7.4.09+040.JPG" /></a><br /><div><div><div><div>Summer went by quickly, but we jam-packed it for sure!</div><div> </div><div>In JUNE, Morgan's parents and I (he was out of town) attended the annual CF Parent Night, put on by Faith's Sutter care team. Representatives from many of the pharmaceutical companies and fundraising foundations, as well as the Sutter Children's center nurses and doctors attend. The team shares with us the new findings, new meds or treatments that will be in effect soon and what they learned at their annual conference. It's very enlightening and hopeful. It's also one of the only times us parents are able to converse in person because our CF kids are not supposed to be near each other for fear that the 'bad' germs will be spread from one to another. Faith had an appointment with her CF Team and all is good EXCEPT that she hasn't gained any weight over the past 3 months.</div><div> </div><div>We joined the Davis family and went 'camping' for a day. I'd planned that trip 6 months earlier and of course, that ended up being the one weekend the weather turned bad. It didn't feel like summer, but was still a good time. The girls got to try fishing with daddy, Faith caught a butterfly with her bare hands, took Falon on a long 'hike,' we rented a paddleboat and roasted marshmallows. Plenty of camping stuffed into one day :)</div><div></div><div> </div><div>Morgan and I also had our 10 year High School reunion. I was on the planning committee and it was wonderful to see so many friends from the past. Everyone had a great time chatting and dancing! We also went to the Enduro races where the track is soaped so the cars slip and slide. The girls have decided they like to help clean, thank goodness!</div><div></div><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiKQUEFLfd0Isotw1TCvm84GAjf7y4uxbTnUdMlygfHixKv7SaamEGXO_5fQaM7Q5-U4FNUdmrDEr0Zmi7d1F7mfZJ7d3zfiE9k75f7t6uXJi7AEWupYIF8aycA43YOtnrmdqbw1JbWJBo/s1600-h/7.4.09+136.JPG"><img style="WIDTH: 200px; HEIGHT: 150px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5387028505191740562" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiKQUEFLfd0Isotw1TCvm84GAjf7y4uxbTnUdMlygfHixKv7SaamEGXO_5fQaM7Q5-U4FNUdmrDEr0Zmi7d1F7mfZJ7d3zfiE9k75f7t6uXJi7AEWupYIF8aycA43YOtnrmdqbw1JbWJBo/s200/7.4.09+136.JPG" /></a> <a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEioiVl9qztstvJ0SVwuAsv5TA28eIGmgP_09c8o-bSSoKGYjjP3U9eUlzrMt_nm-44zu4KEyj-N20wqVLS_nNtQXcw5iDAQszcu02Z4PefvulrG3H97Em1lRYfzQtus0p7Di3UX0ScVCi0/s1600-h/BNB+%26+July+4+349.JPG"><img style="WIDTH: 200px; HEIGHT: 150px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5387028478482620882" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEioiVl9qztstvJ0SVwuAsv5TA28eIGmgP_09c8o-bSSoKGYjjP3U9eUlzrMt_nm-44zu4KEyj-N20wqVLS_nNtQXcw5iDAQszcu02Z4PefvulrG3H97Em1lRYfzQtus0p7Di3UX0ScVCi0/s200/BNB+%26+July+4+349.JPG" /></a> <a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjaNeKqkPTjmvWDx9cIsFYfKqRlE3RARSn-bq4PD1Y8Bch0OvI1DC-8fquYt9ECHT2vZu6MqgZx3flvEIYkCzwo7xYr1yFoSfH77LEIbhjsNOKNlPw8kv0hqD3YusA_G4B77Qn5EcaPOdE/s1600-h/july4+002.jpg"><img style="WIDTH: 200px; HEIGHT: 150px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5387028488443537746" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjaNeKqkPTjmvWDx9cIsFYfKqRlE3RARSn-bq4PD1Y8Bch0OvI1DC-8fquYt9ECHT2vZu6MqgZx3flvEIYkCzwo7xYr1yFoSfH77LEIbhjsNOKNlPw8kv0hqD3YusA_G4B77Qn5EcaPOdE/s200/july4+002.jpg" /></a><br /><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiT9Gsw0HSSfOfAmDdXkLndN4ucGxog8XKGxQSB7lClNqsLwGFnyVdUiwCpMlqmxi28TMIhXaPjFbzWzt4DFR6IBw3Fli9tUS7ep_wr_7rl0Wc0hqNVzS7RvxAyU9L3hWe0_jQdxJyooJg/s1600-h/july4+001.jpg"><img style="WIDTH: 200px; HEIGHT: 150px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5387028495959287362" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiT9Gsw0HSSfOfAmDdXkLndN4ucGxog8XKGxQSB7lClNqsLwGFnyVdUiwCpMlqmxi28TMIhXaPjFbzWzt4DFR6IBw3Fli9tUS7ep_wr_7rl0Wc0hqNVzS7RvxAyU9L3hWe0_jQdxJyooJg/s200/july4+001.jpg" /></a> <a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiooyvHvRRBBerndz6IyI_bHE69qgzybE18mJGRxTJnvBKJkg_d3cWXxkQpOQxbyJa2hSKqCFK5-GmdkdA6D8TQXbfm158zrnSE3-d7uI0GFMNLlPJ1Uu-6-f2OVdPygudp5dY92xLLimk/s1600-h/7.09+coldplay2.jpg"><img style="WIDTH: 200px; HEIGHT: 133px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5387028472277759330" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiooyvHvRRBBerndz6IyI_bHE69qgzybE18mJGRxTJnvBKJkg_d3cWXxkQpOQxbyJa2hSKqCFK5-GmdkdA6D8TQXbfm158zrnSE3-d7uI0GFMNLlPJ1Uu-6-f2OVdPygudp5dY92xLLimk/s200/7.09+coldplay2.jpg" /></a><br /><div>In JULY, we enjoyed attending any birthday parties, Independence Day, a Coldplay concert, a cabin in Tahoe with the Davis family and Fort Bragg with just our little family. Faith was on her TOBI month of extra treatments, so the days were already full with that, but we managed to have FUN! </div><div> </div><div>Fort Bragg was beautiful and the weather was only 50-60 degrees when back home it was a whopping 107! The patio from our small hotel looked directly at the ocean and we could walk straight out to play in the tidepools and run from the waves. The girls had a fantastic time and we loved watching them. I'm sure Faith was able to breathe more clearly in the salty ocean air, too! I don't have a camera right now because mine finally gave out, so any pictures are borrowed :)</div><div></div><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg41GuiKgOqM9JbPz10d9q1enAy_MfhCTu0-lYhHZeyPDCwW-Z_oqmLMZm8vukcLd0SLjMyQsmXtO9j4E8ODinVz42GPxa0EUSnAyl8R9Sy59YpTE8gE-KDWwUibIn7Ws7wLd9kqltPhXQ/s1600-h/7.25.09+Fort+Bragg+181.JPG"><img style="WIDTH: 200px; HEIGHT: 150px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5387034836167973666" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg41GuiKgOqM9JbPz10d9q1enAy_MfhCTu0-lYhHZeyPDCwW-Z_oqmLMZm8vukcLd0SLjMyQsmXtO9j4E8ODinVz42GPxa0EUSnAyl8R9Sy59YpTE8gE-KDWwUibIn7Ws7wLd9kqltPhXQ/s200/7.25.09+Fort+Bragg+181.JPG" /></a> <a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEibnXmAOVS8V7vx7mz84FBRKaP6peHTyQYHWhsIpeeUnC0r3bBm_b5tJHzuOrDrxMBI6mI-I7Nqid09zg_Y4DBQyRp6pY8vO88HfSccBD87EirXbHW8P5hN8xBT23NnST2pLylIgxsx_A8/s1600-h/7.25.09+Fort+Bragg+127.JPG"><img style="WIDTH: 200px; HEIGHT: 150px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5387035138106079042" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEibnXmAOVS8V7vx7mz84FBRKaP6peHTyQYHWhsIpeeUnC0r3bBm_b5tJHzuOrDrxMBI6mI-I7Nqid09zg_Y4DBQyRp6pY8vO88HfSccBD87EirXbHW8P5hN8xBT23NnST2pLylIgxsx_A8/s200/7.25.09+Fort+Bragg+127.JPG" /></a><br /><iframe allowfullscreen='allowfullscreen' webkitallowfullscreen='webkitallowfullscreen' mozallowfullscreen='mozallowfullscreen' width='320' height='266' src='https://www.blogger.com/video.g?token=AD6v5dxhPTF9NagH1IPocAxhvoHn5GYWwR32CS0kbNrKKEjvQ99kHTxebJ94pqUTv6D2XIVEaGTKoy-CpcZstkMazA' class='b-hbp-video b-uploaded' frameborder='0'></iframe><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj2ftF65Y2wmgMCP2EiZVQ8p0r__EBk0hblwd0WIx5pkpRrqVgWPVZXdSZJvjWnmrs81CosamqpH1nkeX98Yvi1CNtANxFAYbKVkOwkMyADINA1pDbXrSUvRxbCq4Ryd7rYyH-5kA7wbLQ/s1600-h/7.25.09+Fort+Bragg+188.JPG"><img style="WIDTH: 200px; HEIGHT: 150px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5387034847967584082" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj2ftF65Y2wmgMCP2EiZVQ8p0r__EBk0hblwd0WIx5pkpRrqVgWPVZXdSZJvjWnmrs81CosamqpH1nkeX98Yvi1CNtANxFAYbKVkOwkMyADINA1pDbXrSUvRxbCq4Ryd7rYyH-5kA7wbLQ/s200/7.25.09+Fort+Bragg+188.JPG" /></a><br /><div> </div><div>I have to share some of the cute things the girls have said lately. While eating at a restaurant, Morgan and I were commenting on how well behaved some nearby kids were. Faith quickly responded, "So, you want me to be like everyone else?" Haha, no not exactly, no way no how! Another time, I was taking her out of the car at the grocery store and she said randomly, "Mommy, old people are kinda funny looking." Brooke for some reason drops the first letter of almost every word when she speaks, like Mommy = ommy, she calls Faith "Ace" because she can't do the "F." She's also very in to trying to sing. When we were at the Tahoe cabin, Faith had already fallen asleep and Brooke was laying in her sleeping bag on the floor in the dark singing all our names out of tune, "Ommy, Daddy, Ace, Bookie!" Falon was spayed this month and Brooke continually asks, "Puppy all betta now? Her tummy all betta, huh? No more owies?"</div><div></div><div> </div><div>In AUGUST, we attended an friend's wedding in Walnut Creek without the kids, camped at Meadow Lake, went to the circus and the enduro races again. Meadow Lake is near Truckee, so not all that far in distance, but the roundabout way to get there pulling the trailer makes it over a 3 hour drive. We brought the rhino and had a great time with just the kids and the 2 dogs. It's a popular jeeping area, but that weekend was pretty quiet and there are no motors allowed on the lake. It was beautiful.</div><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjLBEeP6ZxE6xyySRGEHJdv2G4cYrHoT9VeqJGgxNk4E5bmbeeiDK4mmBKLWVHoSD046k9F-iNwGRUAT5I7cCiJ-a5hdY-ap0FE3mRdWV099Z4bKLlH37h70etYIUDUQhhmSYJStwdgmX8/s1600-h/IMG_0691.JPG"><img style="WIDTH: 200px; HEIGHT: 150px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5390627821525018530" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjLBEeP6ZxE6xyySRGEHJdv2G4cYrHoT9VeqJGgxNk4E5bmbeeiDK4mmBKLWVHoSD046k9F-iNwGRUAT5I7cCiJ-a5hdY-ap0FE3mRdWV099Z4bKLlH37h70etYIUDUQhhmSYJStwdgmX8/s200/IMG_0691.JPG" /></a> <a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhxSHr7mUiKOoKQsSa8nhPOihiskKT5v6e83RWZ5WmddsxGEDKBiMf4PpLV9hKeeKIBpPH206quIaxZazhDnjmWz7QRgybo5-ZZSAjd7sm515GAcudwMka25NnaAs2Dw1IPVSXUuUeU_hg/s1600-h/IMG_0772.JPG"><img style="WIDTH: 150px; HEIGHT: 200px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5390627833800804898" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhxSHr7mUiKOoKQsSa8nhPOihiskKT5v6e83RWZ5WmddsxGEDKBiMf4PpLV9hKeeKIBpPH206quIaxZazhDnjmWz7QRgybo5-ZZSAjd7sm515GAcudwMka25NnaAs2Dw1IPVSXUuUeU_hg/s200/IMG_0772.JPG" /></a><br /><div>The circus was a blast for the girls and our seats ended up being practically front row. Faith commented, "Everything is so magical!" I tell you this because I think it's almost unbelievable, but cotton candy and popcorn were $10 each! Of course, we still had to buy it though :)</div><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgtruMkeyDOm5faOM-knjRV6sNQtE2Od_RyWSfbEjSRSC_bPzGPpjJPXuRVIYgIjSu-cm1r5TA-GYFe_GJozPb3nNOCDlosjweKVEorEk2yXOzjA2QxISio-HQ1Cf2yc6AjCDWtW4i1PRU/s1600-h/8.2009+Circus+027.JPG"><img style="WIDTH: 200px; HEIGHT: 150px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5390629678399138322" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgtruMkeyDOm5faOM-knjRV6sNQtE2Od_RyWSfbEjSRSC_bPzGPpjJPXuRVIYgIjSu-cm1r5TA-GYFe_GJozPb3nNOCDlosjweKVEorEk2yXOzjA2QxISio-HQ1Cf2yc6AjCDWtW4i1PRU/s200/8.2009+Circus+027.JPG" /></a> <a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhOhHihLWDYkrfflRbLX8tTxKys0XJJw66-98S7ig8GVxTTOQAkz243SoIG6W33QNmk4IQUeOJY7EUYvJZ4cgbLI_bbkezZYng4kuhR5UlEkpMF5C2aN8NOwzMt8g8fdJAppycfCfHXKW0/s1600-h/IMG_0636.JPG"><img style="WIDTH: 200px; HEIGHT: 150px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5390627786618747874" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhOhHihLWDYkrfflRbLX8tTxKys0XJJw66-98S7ig8GVxTTOQAkz243SoIG6W33QNmk4IQUeOJY7EUYvJZ4cgbLI_bbkezZYng4kuhR5UlEkpMF5C2aN8NOwzMt8g8fdJAppycfCfHXKW0/s200/IMG_0636.JPG" /></a><br /><div>The Enduro races were on a very hot evening. We sat in the shade and brought a little fan, but still we were all sweaty. Faith ate some ice cream while we took turns fanning her. Her preschool teacher was sitting right behind us so she was very excited about that and the car she picked to be 'hers' won! </div></div></div></div></div></div></div></div></div></div></div>Faithhttp://www.blogger.com/profile/05879331598882462876noreply@blogger.com0tag:blogger.com,1999:blog-1530181162376293362.post-68803127501777993972009-09-29T14:39:00.001-07:002009-10-09T09:05:17.247-07:00GREATSTRIDES May 2009<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhXRJ0DmhAdQZhG3z8SYWmIR-AIvOObFiudX3P5BAkBS-Q4o8a0pIrleFPxXzbvR5q7s2FX5tgJz3aPLS0tnQTFPaw8kQ8LbLE-DcWOUka8nO6BJI_XHh8RpyaN2ZWToksmNyV4IgNDSt0/s1600-h/IMG_0275.JPG"><img style="WIDTH: 200px; HEIGHT: 150px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5387013490413862306" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhXRJ0DmhAdQZhG3z8SYWmIR-AIvOObFiudX3P5BAkBS-Q4o8a0pIrleFPxXzbvR5q7s2FX5tgJz3aPLS0tnQTFPaw8kQ8LbLE-DcWOUka8nO6BJI_XHh8RpyaN2ZWToksmNyV4IgNDSt0/s200/IMG_0275.JPG" /></a> <a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjY0v7Vq4_7kCRsKvnUL9vsqoVohLnfsjlGHM2jgTDBoMk3e8UibxrBe0KV0d6rS8pjLwZ5FfeFsVOPGcd7AOHQbmPGph8R3XECPlcgCVsghOGv-7JvX-OTjnoKu66Nodq0EBFJW0F4BjA/s1600-h/101_4185.JPG"><img style="WIDTH: 200px; HEIGHT: 150px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5387013482421999826" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjY0v7Vq4_7kCRsKvnUL9vsqoVohLnfsjlGHM2jgTDBoMk3e8UibxrBe0KV0d6rS8pjLwZ5FfeFsVOPGcd7AOHQbmPGph8R3XECPlcgCVsghOGv-7JvX-OTjnoKu66Nodq0EBFJW0F4BjA/s200/101_4185.JPG" /></a> <br /><br /><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhA6wp-K114ew2vg9gokyQ_VD5dXqy_BSd80r7lVCo5P7D0sg3ePR0KOFYC2wKFq7kmcG7n1xa1uNOlLKtVJrSEQH_5iJZbqScSnEZJ_E91w89yT0RLoyOiseWSiiiHmTB9CcWqkKPlusk/s1600-h/101_4175.JPG"><img style="WIDTH: 315px; HEIGHT: 198px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5387013474844784114" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhA6wp-K114ew2vg9gokyQ_VD5dXqy_BSd80r7lVCo5P7D0sg3ePR0KOFYC2wKFq7kmcG7n1xa1uNOlLKtVJrSEQH_5iJZbqScSnEZJ_E91w89yT0RLoyOiseWSiiiHmTB9CcWqkKPlusk/s200/101_4175.JPG" /></a><br />Shortly after the last post, Faith became ill with a nasty cough. We took her to the pulmonologist and she was put on antibiotics right away and advised not to attend the annual CF Foundation Greatstrides walk if it was raining. So, a cough for Faith doesn't get your ordinary treatment...it requires us to increase her Vest time to 3-4 times/day (totaling an hour+), more oral meds, extra 4 puffs of inhaler each day, a minimum of one breathing treatment to reduce inflammation/CF DNA mucus, but up to 4 (10 minutes each), and it's a TOBI month for her, which means that already in her routine for the month she's got (2) 30 minute breathing treatments...for a total of about 2hr30min of treatments EVERY day. Yuck!<br /><br />I was scheduled to help set up early the morning of the walk and it seemed some meteorologists said it would rain and others said it wouldn't. I stayed positive and allowed her to come at start time, but it did begin to rain. Thankfully, Grandpa Marlin was there to swoop her and Brooke away and take them home. The rest of Team FaithFULL stayed to walk and enjoy the entertainment.<br /><br />The overall turnout for the walk was drastically reduced due to the rain and also the economy. Our grand total this year was over $6200, not too shabby for a rough year! In total, Team FaithFULL has raised OVER $50,000 since Faith was diagnosed with Cystic Fibrosis. Thank you all SO very much for your love & support!<br /><br />Once her 2 weeks of antibiotics were up, we again visited the pulmonologist to decide if her lungs were clear or if she'd need to be admitted to the hospital for IV's. Though a light cough resumed, her lungs were clear and yet again, she's skipped the hospital, phew!<br /><br />The girls are loving Falon, who is now 3 months old and learning to be good. We went to Sand Mountain toward the end of the month and Faith had a preschool graduation (she went this year only one day/week and will go 2 days/week next year)!Faithhttp://www.blogger.com/profile/05879331598882462876noreply@blogger.com0