It's been far too long since I've made an update...last summer. So I'm planning to go back and add a few in. We're gearing up for the Cystic Fibrosis Foundation's Greatstrides walk May 21, 2011 at the capital and we'd love for you to join us and/or make a donation. It's a casual walk on beautiful grounds with lunch provided and entertainment for children and adults! To sign up or donate please go to www.TeamFaithFull.com and be sure to check out Faith's latest VIDEO!
Overall Faith is doing quite well. She just turned 6 in March and has lost her 2 front lower teeth which she is ecstatic about to say the least. She also has a small cross bite and now wears a retainer....and of course being that it's Faith, she loves that too!
At her last clinic appointment she was given a prescription for hypertonic saline. At our clinic, kids start this inhalation therapy (like inhaling salt water mist) at age 6 because research has proven that it significantly aids the lung function and reduces the number of lung infection in people with CF. So she uses a quick inhaler of a bronchodilator to open up her airways prior to these two added 15 minute breathing treatments to her daily routine. Thankfully, Faith is a trooper and hasn't really complained about it at all. It made her cough alot in the beginning, but she's more used to it now. We're trying to get another Paritrek ordered, which is a portable nebulizer so she can walk around or be in the car or wherever and do her breathing treatments. We had one before that gave up on us....always on the go....she used it camping around the fire and everything! CF can't slow us down much!