We celebrated Brookie turning 3 by giving her an official party, finally. It was a great bash at the backroom of Strikes Bowling.
Faith is loving dance class and Brooke is thinking about joining in soon. Faith's appointment went well this month...she gained about a pound since last month! She's doing so well that her pulmonologist gave us the option to skip her CF Team appointment since we'd pretty much done everything on their task list over the past few appointments. She also discussed with us the option of quitting TOBI semi-permanently for now since she's had clear cultures for about 18 months. She's only ever cultured a 1+ Pseudomonas twice in her life, approximately 2 years apart, so it seems to be a rare occurence. What we hope is that she doesn't culture it again for many months or even years. If she does so within the next few months, it is possible that she has it so deep in her lungs that it takes a few months of a break from TOBI inhaled antibiotics to grow up to a point at which the throat culture would catch it. So, it's a wait and see game, but for now....NO TOBI, which elates us :)
Mid January we had this conversation:
Faith: "Mommy, if you have an eye in the back of your head, how does it see?"
Steph: " It's super special"
Faith: "Does it still work when you turn your head like this?"
Steph: "Yup, it's magic."
Faith: "Will I ever grow and eye in the back of my head?"
Steph: "Yes, you get it when you have kids and become a mommy"
Faith: "Oh! And how can it see through your hair?"
Such inquisitive thoughts she has for a little one!
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